Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the… Read More »
The 2023 Walk & Roll to Cure FSHD
Team Up to End FSHD through the Walk & Roll
Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up -… Read More »
Walk & Roll to Cure FSHD – All Your Questions Answered!
The Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place… Read More »
Legacy planning made simpler
If you have ever wished that you could do more to help in the fight against FSHD, we invite you to consider joining the FSHD Society Legacy Circle by including… Read More »
DIY holiday cards
Many of you have asked if the FSHD Society could provide holiday cards you can send to family and friends, asking for donations. We heard you and have come up… Read More »