Our look is new. Our purpose is the same. Learn more about our brand evolution.
By Selina Lai, Pacific Northwest Chapter Director  Our attendance at the Denver Patient Connect Conference last June inspired us to plan a summer trip to Europe to participate in the […]
World FSHD Day, a global movement to raise awareness of FSHD, occurs on June 20. From orange slice selfies and proclamations to lit up buildings, World FSHD Day was a […]
by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join […]
George Pollock is tackling the Triple Bypass this July Click HERE to donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first […]
Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta, […]
