by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join… Read More »
Fundraise YOUR way
FSHD Cycling Team to ride again
George Pollock is tackling the Triple Bypass this July Click HERE to donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first… Read More »
Calgary 360 slides
Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta,… Read More »
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the… Read More »
Team Up to End FSHD through the Walk & Roll
Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up -… Read More »