by Faye Flatt, Ontario, Canada Yoga has always looked effortless to me and I enjoy watching the gentle movements from one pose and smooth transition to another. In my head it looked like something I could do. So a couple years ago I decided to try it. The instructor was a friend and encouraged me…. Read More »
FSHD Warrior Pose [VIDEO]
Self-healing from muscular dystrophy
BY BEATRIZ NASCIMENTO, SAO PAOLO, BRAZIL I had some mild muscle weakness since childhood, but in my 20s everything was getting harder. I was constantly fatigued and stressed. By my early 30s, fast decline in muscle functions due to FSH muscular dystrophy was making me believe that the rest of my life would be a painful downhill trip toward… Read More »
Medicare coverage for ongoing maintenance physical therapy
Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs, and you can then continue exercises on your own. Other times, however, ongoing PT may be necessary to maintain your current status (strength, flexibility, mobility,… Read More »
Muscle activation strategies for FSH muscular dystrophy
Our Dallas support group meeting on January 19th featured outstanding presentations and hands-on demonstrations of muscle activation and the Rolf method, which one of our new Dallas-area members has found very beneficial in addressing his FSHD issues. Note that these methods have not been studied scientifically for efficacy in FSHD; we are simply sharing patients’… Read More »
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise, just to avoid damaging or “using up” what healthy muscle is left. There is a pervasive uncertainty and fear among patients and doctors alike that… Read More »