Explore blog posts, educational webinars, and upcoming events focused on the latest Research Updates.
By: Feng Kok, Kayleigh Worek For most people living with Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic test is more than a lab result. It’s confirmation after years of unanswered questions, […]
By: Bill Sarraille, Wayne Winegarden, and Amanda Hill Living with facioscapulohumeral muscular dystrophy (FSHD) can affect nearly every part of daily life. A new study is the first to look […]
If you joined BetterLife FSHD and answered the FSHD Progression survey, it’s possible you wondered why we asked if you could do a bicep curl with your right arm while […]
Press release originally published to Business Wire on June 26, 2026. For additional information and analyses: Nature, Vol 655, July 2, 2026 Lei Lei Wu’s story for EndPoints News Pump […]
Reflections from Mark Stone Three years ago, Project Mercury began with a simple but urgent realization: promising therapies for FSHD were advancing faster than the world’s ability to deliver them […]
The FSHD community received encouraging news today as Novartis announced that delpacibart braxlosiran (del-brax) met the primary and key secondary endpoints in the biomarker cohort of the Phase 1/2 FORTITUDE […]
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