FSHD University

FSHD University is your hub for learning about the art and science of living with FSH muscular dystrophy.

This is YOUR university! Join us every 3^rd Thursday for our monthly FSHD University webinar, where you’ll hear from different experts in the community to help you on your path with FSHD.

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Explore FSHD University

Physical Health

Learn the best ways to stay active, manage your symptoms, and take care of your body with FSHD! From medical care to physical therapy and exercise, find tips to help you feel your best.

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Wellness

Living with FSHD can be challenging, but your mental health matters too! Discover ways to manage stress, handle life’s ups and downs, and find joy in everyday moments.

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Research

The more you know about FSHD research, the more you can take charge of your care and even help shape the future of treatments.

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FSHD University Videos: Highlights from 2025

FSHD University: The Global FSHD Innovation Hub with Amanda Rickard, Managing Director

Smart Home Technologies for Individuals with FSHD, FSHD University with Justin Hill & Don Burke

Preventing Falls: Moving with Balance, Awareness, and Intention, FSHD University with Frank Hanley

Breathing with FSHD, FSHD University, June 26, 2025

FSHD University: The Pediatric MOVE Study

Anesthesia During Surgery for People with FSHD, FSHD University Feb 2025

FSHD University: Physiotherapy & Exercises with FSHD – Optimising Mobility & Function, April 2025

Disclaimer:

Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed, nor is it a substitute for professional medical advice. Please consult with your own healthcare provider about any medical interventions.