Lighting the Way to a Cure

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When you sign up to receive FSHD Society email alerts, you can expect to receive valuable information about

  • research progress
  • education programs and events
  • local chapter programs and events
  • living well with FSHD
  • special events and fundraising opportunities

We value your privacy, so we will protect your information and never rent or sell it to anyone.  You can change your email subscription at any time.

Just fill in your name and email below!

Ready for More? Want to Dig Deeper?

Join the FSHD Society's Research Contact Registry

The FSHD Society maintains the world’s largest contact registry of FSHD patients and families. We will contact members regarding any research studies and clinical trials in their area. We do not share your data with anyone else, so you don’t need to worry about loss of privacy or about getting contacted directly by companies.

Learn More