Walk & Roll to Cure FSHD

When we move together, progress moves faster.

Walk & Roll to Cure FSHD brings communities across North America together to fund research, raise awareness, and remind families living with FSHD: you’re not doing this alone.

A Movement Made Up of a Thousand Moments

Every Walk & Roll is local; built by volunteers, families, and friends. But the impact is national. When you show up in your city, you’re joining a bigger wave of support that pushes research forward and grows the community that surrounds families living with FSHD.

We fund progress: every dollar helps accelerate research and move promising work closer to treatments.

  • We grow awareness: every team page, post, and conversation expands understanding of FSHD.
  • We show up for families: in person and online—so no one feels isolated in this diagnosis.
  • We build momentum: one event inspires the next, city to city, season to season.

Find Your Walk

Find your Walk & Roll community
From coast to coast, local Walk & Roll events bring the FSHD community together. Use the map to find an event near you—or join virtually from anywhere. Map below!

Don’t see a location near you?
You can still be part of the movement: start a new Walk & Roll, host a DIY fundraiser, or register as a virtual participant and fundraise from home.

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New this year:

Orange credit card pouch with FSHD Society logo.
Orange credit card pouch with FSHD Society logo.

Kickstart your fundraising with a self-donation (and get a thank-you prize!)
Add a self-donation when you register to jumpstart your page and lead the way for your supporters. As a thank-you, you’ll receive a small prize.
Self-donations are optional, but they’re one of the fastest ways to build early momentum—and show others you’re all in.

Additional fundraising information can be found here.

 


The Walk & Roll to Cure FSHD is focused on raising funds to end FSHD. Led by dozens of dedicated volunteers and supported by a small staff, these events take place across the U.S. and Canada.

Additional fundraising information for Participants can be found HERE.

Additional fundraising information for Team Captains can be found HERE.

Interested in Sponsoring a Walk & Roll?

Support a great cause while showcasing your business in the community! Walk & Roll sponsors help power progress toward treatments and a cure for FSHD.

To explore sponsorship opportunities, please click the below button. Questions: please contact FSHCommunity@Fshdsociety.org.

View Sponsorship Opportunities

Walk & Roll: History & Community

We began the campaign in 2018 with just 5 events. This community of fierce FSHDers across North America continue to celebrate successful Walk & Roll events year after year. Since the campaign began, the community has contributed more than $4.5 million to fund critical research and programs of patient education and support.

We can’t wait to see you at the Walk & Roll this Fall!

Max Adler, 2024 National Walk & Roll to Cure FSHD Ambassador

Max Adler launched Team Mighty Max because he watched his Mom, Lisa, and Grandma Ruth struggle with FSH Muscular Dystrophy. Determined to do all he could so that no one would have to go through this ever again, he joined forces with the FSHD Society and determined to be a part of the solution.

Thank you to our National Sponsors!

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This is how momentum is made: one fundraiser, one team, one walk at a time.