Finding shoes to fit your needs AND your personality by Beth Deloria, Allard (content sponsor) Did you know that shoes can be used to guess someone’s traits or characteristics? A 2012 study showed that 90 percent of a person’s personality is reflected in their choice of footwear. For those of us needing custom orthotics and… Read More »
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Dr. Anthony Romeo on scapular surgery
One of the classic symptoms of FSHD is “scapular winging.” The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel’s wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works for some patients is surgery to attach… Read More »
Telemedicine for FSHD
Telemedicine for FSHD is an idea whose time has come! If people with FSHD are rare, doctors who understand FSHD are rarer still. Patients who don’t have the time or resources to travel long distances may never have the opportunity to receive state-of-the art medical care for their condition. That is about to change. One… Read More »
Genetic testing for FSHD—a new frontier
There are exciting new developments in FSHD genetic testing. A new genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing services. Other companies and groups are likely to follow suit. This is the first major innovation in FSHD genetic testing in nearly three decades… Read More »
FSHD and COVID-19
As communities everywhere take steps to reduce transmission of COVID-19, we would like to share some information provided by our panel of medical advisors. For most individuals with FSHD, the risk of serious illness from COVID-19 infection is the same as the general population. The CDC and MDA websites provide detailed information about who is… Read More »