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We are busy preparing for World FSHD Day this June 20. World FSHD Day is a global movement to raise awareness of FSHD. From orange slice selfies and proclamations to […]
by Erin Saxon, FSHD Society A few months ago, I began an exciting project: capturing the stories of the early members of the FSHD Society. Since then, I’ve interviewed several […]
Every move we make drives us toward our goal By June Kinoshita, FSHD Society There is so much going on at the FSHD Society that for someone observing from the […]
A transformative force for the FSHD Society by June Kinoshita, FSHD Society Judy Seslowe, whose life was marked by compassion, leadership, and unwavering commitment, passed away on April 13, 2025 […]
FOR IMMEDIATE RELEASE RANDOLPH, Mass., Feb. 26, 2025 — The FSHD Society, a leading nonprofit dedicated to advancing research and improving the lives of individuals with facioscapulohumeral muscular dystrophy (FSHD), […]
