Now available. Read our 2025 Impact Report
by Samantha Schneider The moment we’ve all been waiting for has arrived: The 2026 Walk & Roll to Cure FSHD season is officially here! Starting at the end of August through October, communities in more […]
Originally posted to PR Newswire on July 30, 2026 The growing multi-stakeholder Collaborative brings together biopharma sponsors, academic experts, technology partners, and funders to advance facioscapulohumeral muscular dystrophy (FSHD) research […]
By Raymond Huml, MS, DVM, RAC-US I was privileged to attend the 2026 International Research Congress (IRC) on FSHD, held June 25–26 in Rosemont, Illinois. As the father of two […]
by Raymond Huml, MS, DVM, RAC-US As both the father of two children living with FSHD and a biopharmaceutical industry veteran with more than 30 years of experience, including senior leadership […]
By Beth Johnston and Jack Gerblick One way we celebrate the resilience and brilliance of our FSHD community is to recognize our heroes – community leaders who have gone above […]
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