The FSHD Society (FSHDS) respects the privacy of all visitors to our website. We will not sell, share or distribute your information (regardless of whether you provide it to us via this website or by any other means) to any third party without your express permission. However, when you voluntarily disclose personal information online, such as on this website, message boards, chat rooms or through e-mail, that information may be collected, disclosed and used by others.
You may browse this website without identifying yourself or providing any personal information about yourself. However, we do collect general, non-personally identifiable information for the purpose of learning general demographic information, administering this website, tracking the number of visits to website pages, and similar purposes. If you donate, register for an event or request information, you will be asked to provide personal information such as your name, address, e-mail address and telephone number. We may use this information to communicate with you by e-mail and postal mail. If you do not wish to receive communications from FSHDS, or wish to update any information on your records, please inform us at firstname.lastname@example.org.
Online donations are made via a leading third-party payment processor whose operations the FSHDS believes to be secure; however, FSHDS is not responsible for the security of transactions made via the payment processor.
FSHDS will disclose information when legally required, such as in response to a subpoena or court order, and also may disclose information in response to the request of a law enforcement agency.
This website contains links to websites operated and maintained by third parties. The links are provided for convenience only. Those third parties and websites are unaffiliated with FSHDS, and we have no control over them. FSHDS does not necessarily endorse, and is not responsible or liable for, the content, information, quality, products, services, operators, or any other aspect of those websites. FSHDS is not responsible or liable for any loss or damage caused by or in connection with the use of those websites or any information, products or services on or from those websites.
FSHDS welcomes and permits links to this website, FSHDSociety.org, from other websites, but only if: (a) the link and the host website do not suggest or imply that FSHDS is affiliated with, sponsors, promotes or endorses the host website or any other entity, individual or organization; (b) the link and the host website do not use FSHDS content for fundraising or commercial purposes; (c) the link and the host website do not use FSHDS copyrighted materials without the express written permission of FSHDS; and (d) when activated by a user, the link must display this FSHDS website full-screen and not with a “frame” on the host website. We reserve the right to withdraw permission for any link at any time and for any reason.
All information, messages, articles and other content on this website are provided for general informational and educational purposes only. FSHDS and this website do not provide medical advice or recommendations. Licensed physicians and other medical professionals who are familiar with an individual’s specific health situation should be consulted for diagnosis and treatment of Facioscapulohumeral Muscular Dystrophy and any other medical conditions. Neither FSHDS nor any contributor to this website can be liable or responsible for any result from the use of this material.
This website contains third party information. Whenever possible, the name of the source is identified. Statements or opinions expressed on this website by healthcare professionals, scientists or other authors solely reflect the views of each such individual and do not necessarily reflect the views or policies of FSHDS.
FSHDS (AND ITS EMPLOYEES, OFFICERS, DIRECTORS AND VOLUNTEERS, AND THE CONTRIBUTORS TO THIS WEBSITE) EXPRESSLY DISCLAIM ANY AND ALL RESPONSIBILITY AND LIABILITY (INCLUDING LIABILITY FOR CONSEQUENTIAL, SPECIAL AND SIMILAR DAMAGES) ARISING FROM OR RELATED TO YOUR USE OF OR RELIANCE ON THIS WEBSITE, INCLUDING THE INFORMATION CONTAINED HEREIN, AND FOR ANY INFORMATION OR ADVICE PROVIDED BY ANY THIRD PARTY CONTRIBUTING TO THIS SITE.
FSHDS (AND ITS EMPLOYEES, OFFICERS, DIRECTORS AND VOLUNTEERS, AND THE CONTRIBUTORS TO THIS WEBSITE) MAKE NO REPRESENTATIONS OR WARRANTIES OF ANY KIND REGARDING THIS WEBSITE OR THE OPERATION OF THIS WEBSITE, INCLUDING BUT NOT LIMITED TO THE ACCURACY, CONTENTS, INFORMATION, SERVICES, PRODUCTS OR MESSAGES ON THIS WEBSITE, AND THE OPERATION, FUNCTIONALITY AND RELIABILITY OF THIS WEBSITE. FSHDS SPECIFICALLY DISCLAIMS ANY AND ALL WARRANTIES, INCLUDING BUT NOT LIMITED TO IMPLIED OR EXPRESS WARRANTIES OF MERCHANTABILITY OR FITNESS FOR ANY PARTICULAR USAGE OR PURPOSE.
Except where otherwise indicated, the information and materials on this website are copyrighted by the FSHD Society. All information and materials on this website are provided for personal, noncommercial use only, and the user agrees not to remove any copyright and similar notices. Any other uses are forbidden without the express prior written consent of the FSHD Society.