By Ashley Ferreira On Saturday, May 31, the FSHD Society welcomed members of the FSHD community to Brossard, Quebec, for our Montreal FSHD 360 Conference. With 32 patients, family […]
by Beth Johnston Meet Rick Whitehead from Knoxville, Tennessee! Rick has volunteered with the FSHD Society in several different capacities, and most recently is serving as the Facilitator for our […]
One winter morning, attorney Ed Barocas arrived at a historic courthouse in Morristown, New Jersey, only to find himself waiting outside in the cold. Because he uses a wheelchair, he […]
Looking back, the signs were there long before I had a diagnosis. As a child, I had a curved posture, winging shoulder blades, high arches, and slept with my eyes […]
In honor of World FSHD Day this month, we are spotlighting our community member, Bob Humphreys, who shares with us how BetterLife has helped him on his journey. Note: Testimonials […]
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