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Together we are stronger than FSHD The FSHD Society’s mission is to advocate for every patient to live fully while doing all we can to accelerate the development of treatments… Read More »
Activating the global community
Abdominal and breathing exercises for FSHD
Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. We’re excited to launch Feeling Fit with… Read More »
A sense of belonging
by Raj Badiani, FSHD UK This year’s FSHD Connect was the first one that I’d ever attended, and for me this started late on the Friday evening. Sadly, I had… Read More »
New movie will feature man with FSHD
Actors Max Adler and Danny Kurtzman team up for Good Bad Things Long-time FSHD Society champion, actor Max Adler, shared some exciting news with us that he has joined the… Read More »
Changing mindset about assistive technologies
Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as… Read More »