Lynn Stevens from Goodwill Industries of Northern Louisiana gave a superb webinar sharing much valuable information for anyone with a disability about resources to help people find and keep gainful employment. For anyone living with FSH muscular dystrophy, having this information handy can bring much peace of mind in planning the future. Noting that the… Read More »
The Job Talk
Tell your doctor about the FSHD Masterclass
The FSHD Society is offering its first-ever CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD). This course, which will be held virtually on August 12, is of interest to any physician and allied health professional who sees adult and pediatric neuromuscular patients. They will be able to earn up to 4.25 continuing medical education (CME) credits—a… Read More »
Dave Younger’s exercise arsenal
by David Younger, Austin, Texas Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible. When COVID started, I bought two inexpensive lung exercisers on Amazon. I use the FIGERM breathing trainer twice a day, in the morning and in… Read More »
Calling all parents of early-onset FSHD children
The FSHD Society is launching a new chapter for families with early-onset FSHD (also called infantile FSHD). Led by Ally Roets, the chapter will meet virtually to serve people everywhere who have affected family members. Early-onset FSHD is defined by facial muscle weakness before the age of 5 and shoulder/arm weakness by age 10. Children… Read More »
Tips for FSHD Travelers
by Rich Holmes, Sandwich, Massachusetts With growing numbers of people getting vaccinated against COVID-19, many are looking forward to being able to travel again. But traveling with a disability imposes challenges too. On the FSHD Society Wellness Hour of April 12, 2021, guest speakers Ray Jordan and Carden Wyckoff shared travel tips and considerations. Both… Read More »