Contact Us

We look forward to hearing from you!

We’re here to help. Whether you have questions about FSHD, need support, or want to learn more about getting involved, we’d love to hear from you. Fill out the form below, and a member of our team will be in touch.

"*" indicates required fields

Name

First Last

Email*

Phone

Topics of Inquiry

Message*

Join our email list?*

Yes, Please!

Not yet, thanks.

Join our mailing list to get our blog updates. You can unsubscribe at any time. We respect your privacy and will never share your information.

Phone

This field is for validation purposes and should be left unchanged.

Need Support? Connect with an FSHD Navigator

Our FSHD Navigators provide one-on-one guidance for individuals and families seeking information, resources, and guidance. If you have questions about managing FSHD or finding expert care, our team is here for you.

Mailing Address

For Donations:
FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

For All Other Mail:
FSHD Society
75 North Main Street, Suite 1073
Randolph, MA 02368

Phone

(781) 301-6060