Contact Us

We look forward to hearing from you!

We’re here to help. Whether you have questions about FSHD, need support, or want to learn more about getting involved, we’d love to hear from you. Fill out the form below, and a member of our team will be in touch.

Contact Us

"*" indicates required fields

This field is for validation purposes and should be left unchanged.

Name

First Last

Email*

Phone

Topics of Inquiry (Select One)*

Message*

CAPTCHA

Need Support? Connect with an FSHD Navigator

Our FSHD Navigators provide one-on-one guidance for individuals and families seeking information, resources, and guidance. If you have questions about managing FSHD or finding expert care, our team is here for you.

Contact a Navigator

Mailing Address

For Donations:
FSHD Society
PO Box 70218
Philadelphia, PA 19176-0218

For All Other Mail:
FSHD Society
1035 Bedford Street
Olde Towne Square #1073
Abington, MA 02351

Phone

(781) 301-6060