By Dan Wilson Like many of us with FSHD, lower extremity weakness is a daily part of life. Personally, I am in conflict about socializing and traveling outside of my […]
College is possible. Preparation is necessary. by Wade C., FSHD Navigator Let’s start here: college is possible for students with FSHD. Yes, there might be some careers that aren’t realistic […]
In October, our FSHD University hosted a webinar that explored how smart home technologies can transform daily life for people living with facioscapulohumeral muscular dystrophy (FSHD). Presented by community members […]
By Amy Bekier, San Diego, California Traveling is supposed to be magical. Think sunsets in Santorini, surprise upgrades, and tiny shampoos you definitely don’t need but absolutely take. But if […]
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