Tips and Tricks

by Rich Holmes, Sandwich, Massachusetts With growing numbers of people getting vaccinated against COVID-19, many are looking forward to being able to travel again. But traveling with a disability imposes challenges too. On the FSHD Society Wellness Hour of April 12, 2021, guest speakers Ray Jordan and Carden Wyckoff shared travel tips and considerations. Both… Read More »

by Rick Whitehead, Knoxville, Tennessee I’d like to share one of the most valuable tips I’ve had for dealing with “FSHD belly.” My abdominal core muscles had become like weak balloons, displacing internal organs. It’s not comfortable, not attractive and sometimes painful. I was in a clinical trial in Rochester, New York, and had a… Read More »

If you’re hand grip has weakened, here’s a product that could be helpful. Originally designed to help children grip a pencil properly, these pencil grips are manufactured from soft silicone with perforations to keep your skin comfortable. The manufacturer states that this “pencil gripper can be used by children, adults or the old with arthritis… Read More »

by Dani Liptak I get up in the middle of the night to use the bathroom. I take a step from my bed, reach for my walker, and instantly hit the floor with such force I knock the wind out of myself. My cat goes scurrying by, and I wishfully hope she is going to… Read More »

by Danielle Liptak, Leland, North Carolina Last fall, I traveled with my parents to Boston for the Abilities Expo. It was a great trip and I’d like to share my experiences. With so many of us sheltering in place, it’s good to reminisce and to look forward to the day when we can travel again…. Read More »