Browsing “November, 2018 - FSHD Society - Page 3”

The newly redesigned Advocate is here!

Posted on November 7th, 201811/7/18

We’re proud to announce that the first issue of the FSHD Advocate is available and headed your way! Excited? So are we! Check out some of the highlights of this […]

Filed under: FSHD Society News

Read More

Lexi Pappas’ story of filmmaking and FSH muscular dystrophy

Posted on November 3rd, 201811/3/18

Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about […]

Filed under: Living with FSHD

Read More