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Here are the slides and videos from the Bay Area Family Day conference, held at the Li Ka Shing Center, Stanford Medical School, on Sunday, April 28, 2019. Click on […]
Here is the recording of our June 8th webinar with Abbey Downing, a certified prosthetist/orthotist from the Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a […]
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship […]
New publication details findings from an industry collaborative workshop on facioscapulohumeral muscular dystrophy The FSH Society today announced that it has published a report on its recent workshop with government […]
It makes living easier for everyone by Jane Earl, Madison, Wisconsin I am 66 years old, with FSH muscular dystrophy, and live with my 82-year-old husband, Tony Earl, in a […]
