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The recent news that Lululemon founder Chip Wilson is committing $100 million USD to targeted FSHD research over the next six years has been called ‘game-changing’,generating tremendous excitement and hope […]
by Kent Drescher, PhD, Bay Area Chapter Co-Director I’ve had FSHD symptoms for over 50 years. It seems like I’ve spent much of that time waiting. Waiting for treatment. Waiting […]
To the FSHD community, we’re sharing this invitation from Drs. Statland and Tawil to join the MOVE study. It is open to individuals with FSHD of all ages residing in […]
by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to […]
by June Kinoshita, FSHD Society Over the next 12 to 24 months, four clinical trials for FSH muscular dystrophy are expected to launch. All of these upcoming trials all target […]
