Learn about FSHD from the experts
Check out our FSHD University for videos, articles, and webinars from doctors, researchers, and people living with FSHD.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Being diagnosed with FSHD can feel overwhelming and bring many challenges. Whether you are newly diagnosed or have been living with FSHD for years, managing the condition can feel like a journey with many twists and turns. The good news is that there are resources, support, and a community ready to help you.
At the FSHD Society, we believe that knowledge is power. By learning about FSHD, treatments, daily care, and support options, you can take charge of your health and future.
Managing FSHD looks different for everyone. Some people focus on exercise and mobility, while others need information on pain management, breathing, or adaptive tools. No matter where you are on your journey, we have resources to guide you.
Check out our FSHD University for videos, articles, and webinars from doctors, researchers, and people living with FSHD.
Symptoms of FSHD can look different for every patient. Learn more about the different symptoms impacting individuals with FSHD and how you can manage them.
Use our Care Connector tool to find medical professionals in your area who treat individuals with FSHD.
Explore tips on exercise, nutrition, and daily care to help you feel your best.
Join our Gathering Place support groups or connect with your Local Chapter to talk with people who truly understand what you’re going through.
