Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
We are pleased to announce the 2025 International Research Congress will take place June 12-13 in Amsterdam and online. Registration* has closed. Abstract submissions and scholarship applications are closed.
*Refund policy: Registrations canceled on or before May 1st, 2025 will receive a full refund. No refunds will be given after May 1, 2025.
The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research.
With the recent advances in FSHD research and clinical advances, this conference has become catalytic in translating ideas into potential therapies.
World renowned clinicians, medical researchers, pharmaceutical industry leaders and basic scientists present and discuss new developments, reinforce collaborative efforts, facilitate new initiatives, and coordinate research and clinical activities.
Our 2024 Congress in Denver, Colorado drew more than 230 attendees including more than 50 from industry.
2023 IRC Report in Neuromuscluar Disorders
2022 IRC Report in Journal of Neuromuscular Disease
2020 FSHD IRC Meeting Report (Skeletal Muscle)
2019 Neuromuscular Disease Journal article on IRC
2018 FSHD Research Conference Program Book
2016 FSHD Research Connect Boston
2012 San Francisco, California
