Adaptive Equipment for People with FSHD

Individuals living with FSHD often face challenges with mobility, but with the right tools and equipment, patients and caregivers can make daily life easier. Adaptive equipment can help people with FSHD stay mobile, independent, and safe. Below, you'll find helpful devices and information about how they can support you.

Mobility Aids

Canes and walkers

As leg muscles weaken, a cane or walker can provide balance and stability, reducing the risk of falls.

Wheelchairs and scooters

If walking becomes too tiring, a manual or power wheelchair can help you move around more easily. Scooters are another great option for longer distances.

Leg braces and AFOs (orthotics)

Braces and ankle-foot orthoses (AFOs) support weak muscles and help with foot drop, which can cause tripping. They make walking safer and more comfortable.

Daily Living Aids

Reacher grabbers

These long-handled tools help pick up objects without bending or stretching.

Electric toothbrushes and razors

These make personal care easier when arm and hand muscles weaken.

Adaptive utensils

Silverware with larger handles or built-up grips makes eating less tiring.

Button hooks and zipper pulls

These tools make dressing easier if hand strength is limited.

Home Modifications

Shower chairs and grab bars

Sitting while bathing and having sturdy grab bars can help prevent falls in the bathroom.

Elevated toilet seats

These reduce the effort needed to sit and stand up from the toilet.

Ramps and stair lifts

If stairs become difficult, ramps and lifts can improve access to different areas of your home.

Technology and Smart Home Devices

Voice-activated assistants

Devices like Alexa or Google Home can turn on lights, adjust the thermostat, and make calls with just your voice.

Smart door locks

These allow you to lock and unlock doors without using a key.

Power recliner chairs

These chairs help you stand up without straining weak muscles.

Where to Find Adaptive Equipment

Many organizations and stores offer adaptive equipment to help with FSHD challenges. Here are some helpful resources:

  • Muscular Dystrophy Association (MDA) – mda.org (Equipment loan programs)
  • National Institute on Aging – nia.nih.gov (Guides for home safety and assistive devices)
  • Local Medical Equipment Stores – Many pharmacies and specialty shops carry mobility aids and home modification tools.

Finding the right adaptive equipment can improve your quality of life. If you are interested in using adaptive equipment, talk to your doctor, physical therapist, or occupational therapist to learn what tools will work best for you. Remember, you’re not alone—many people with FSHD use these devices to stay active and independent, and it’s important for you to do what feels right for you.