Additional Resources

Living with FSHD can get complicated. There are lots of things you need to think about, on top of managing your health and symptoms, and everyday life. Read through the resources below to find more information on some commonly searched topics.

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Looking for a local resource?

There are volunteer-led Chapter groups in over 30 locations! Connect with your nearby Chapter to meet neighbors and friends also living with FSHD.

Your local Center for Independent Living may be able to help: