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The FSHD Society drives global research efforts to accelerate breakthroughs in understanding, treating, and ultimately curing FSHD. We are here to connect you to the latest scientific advancements, clinical trials, and opportunities to participate in shaping the future of FSHD care. Explore our resources to stay informed, engage with groundbreaking studies, and contribute to a world without FSHD.
Discover therapies in development targeting FSHD at their root cause. Our Drug Development Pipeline tracks promising treatments from preclinical studies to clinical trials, offering hope for future therapies. Learn how these innovations could transform care for individuals living with FSHD.
Collaboration accelerates progress. The Clinical Trial Research Network connects researchers and institutions worldwide to standardize protocols, share data, and streamline trial recruitment. Join a network dedicated to advancing FSHD science.
Understanding clinical trials enables informed participation. Access guides, FAQs, and webinars explaining trial phases, eligibility, and what to expect from the trial. Knowledge helps bring you closer toward contributing to FSHD breakthroughs.
Find active FSHD clinical trials and observational studies near you. Our updated directory includes trial locations, objectives, and enrollment criteria. Your participation could help bring treatments closer to reality.
Stay ahead with the latest FSHD research news. From peer-reviewed publications to conference highlights, we curate updates that matter most to the community. Science moves fast—stay informed.
