Your trusted research partner
The FSHD Society is the world’s largest FSHD patient advocacy organization focused on research. For over 30 years, we have built strong relationships with the global FSHD research community and earned recognition as a trusted research leader and partner.
We aim to fill research gaps and advance strategic programs to improve understanding of FSHD, drive therapy development, and ensure patients can access and afford approved treatments. To achieve this, we use patient-centered approaches and collaborate with researchers worldwide across multiple disciplines.
