Leadership
Meet our Board of Directors and Senior Management Team
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Progress is driven by people united in purpose. With your unwavering support, the FSHD Society continues turning hope into action. This past year, we accelerated clinical trial readiness, launched groundbreaking initiatives, and ensured that the voices of individuals and families affected by FSHD remained at the heart of every milestone. From advancing research and expanding essential support programs to strengthening advocacy efforts, our community has come together to create real, lasting change.
None of this would have been possible without you, our dedicated supporters, advocates, and champions. Your generosity and commitment fuel every breakthrough. Together, we are making a lasting impact, bringing us closer to effective treatments and, ultimately, a cure. Thank you for being part of this journey and for changing lives in ways that truly matter.
Meet our Board of Directors and Senior Management Team
Expand & Deepen Our Community
Advancing Research
A New Look. A Stronger Voice. The Same Mission. We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with […]
Originally posted to BusinessWire on April 23, 2025 – Advanced MRI analytics to enhance early signal detection and inform development of first-in-class epigenetic therapy SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Epicrispr Biotechnologies, […]
Epicrispr Biotechnologies, a South San Francisco-based biotech company, has announced two major advancements in its mission to develop transformative therapies for genetic diseases. The company secured $68 million in Series […]
Celebrating Women in FSHD In honor of International Women’s Day, join us in celebrating many of the amazing women advancing research and creating community for folks living with FSHD. Thank […]