Media Center

The FSHD Society media center is a resource for background information and media inquiries. Whether you’re a journalist, media professional, or partner, we’re here to help you access the information you need about FSHD and our work.

About the FSHD Society

Founded in 1991 by people living with FSHD, the Society is the world’s largest advocacy and research organization dedicated to advancing treatments and improving the lives of those with FSHD. We collaborate with patients, volunteers, researchers, clinicians, industry leaders, and advocates to accelerate progress and ensure no one faces this disease alone.

Media and press inquiries

For interview requests or additional information, please contact:

Erin Saxon, Marketing Director
erin.saxon@fshdsociety.org

Brand and media resources

For official logos, brand guidelines, and other media assets, visit our brand guidelines page.

For press releases, photos, and additional materials, please visit our Media Library.