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A common household material keeps my feet from slipping  by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one […]
Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta, […]
The MOVE+ study aims to find out. Participants needed! by June Kinoshita, FSHD Society Imagine that you are in an FSHD clinical trial a few years in the future. On […]
…and perhaps refinements yet to be discovered. A first step. by Rick Whitehead, Knoxville, Tennessee I promoted using a double compression abdominal belt for years but was always looking for […]
The Young Adults Zoom group hosted a session last night (March 18) with guests Claire Szabo-Casella and Lou Casella. They shared their experiences using cannabis-based products to address a variety […]
