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by Dani Liptak I get up in the middle of the night to use the bathroom. I take a step from my bed, reach for my walker, and instantly hit […]
by Lynn Stevens, Bossier City, Louisiana About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to work full-time […]
by Ed Barocas, Montclair, New Jersey In spring of 2019, I received two awards for my legal work, the New Jersey Law Journal’s Attorney of the Year Award, and the […]
The FSHD Society is holding a landmark meeting today in which individuals and families living with facioscapulohumeral muscular dystrophy (FSHD) will tell representatives from the U.S. Food and Drug Administration […]
The FSHD Society announced the opening today of its FSHD Connect Classroom, the first online, full-day educational conference in the organization’s history. The online conference takes the place of FSHD […]
