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Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines, updated for the fall of 2024. For people with neuromuscular conditions, this is especially important because: Falling […]
by Yi-Wen Chen, PhD, Children’s National Hospital, Washington DC Many Nobel Prize-winning discoveries have contributed to the advancement of research and treatments for facioscapulohumeral muscular dystrophy (FSHD), and the work […]
The catastrophic impact of Hurricane Helene is a sobering reminder of the importance of being prepared for disasters and the special care people with disabilities need to take. One handy […]
Notes by Helen Cave on behalf of the Wellness Hour Life brings change. Life would be boring if it didn’t encompass change. Yet the changes that FSHD brings to us […]
by June Kinoshita, FSHD Society “Nothing about us without us” has been the mantra of disability rights advocates for decades, but when it comes to Hollywood, the number of feature […]
