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We’re proud to announce that the first issue of the FSHD Advocate is available and headed your way! Excited? So are we! Check out some of the highlights of this […]
Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about […]
What is the scientific rationale and what does the evidence show? by Adam Denny, PhD In recent years, scientists around the world have begun to investigate the role of oxidative […]
Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a […]
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made […]
