Our look is new. Our purpose is the same. Learn more about our brand evolution.
You can now register for the FSHD Family Day Conference in Kansas City, taking place on November 10. Registration is free but required so that we have accurate numbers of […]
Today, The FSH Society, the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), announced the launch of its national chapter development program to provide the opportunity to fund more […]
by Beth Johnston and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature […]
Click Here to read all the recent research and community updates! Highlights of this issue include: Reports from the International Research Congress & the Patient Connect Conference Profiles of our […]
Informative and life changing by Ian Rys, Port St. John, Florida As a first-timer, I was very excited to attend the 2018 FSHD Connect Conference held in Las Vegas, Nevada, this […]
