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Advancing FSHD care is a vital part of what The Society, clinicians and researchers do. So we've brought together key resources and insights for clinicians and researchers to use in their work.
FSHD presents unique challenges for both patients and healthcare professionals. Providing optimal care requires more than just clinical knowledge. The Society is here for clinicians and researchers with resources to help you gain a deeper understanding of the condition, connect with the FSHD community, and stay up to date on the latest advancements in research and treatment. You’ll also gain insights from real patient experiences and discover tools to enhance your practice.
Access tools and information to enhance your clinical practice, improve patient care, and stay informed about the latest guidelines and best practices.
Access the latest international care guidelines, diagnostic criteria, and treatment recommendations. Ensure you’re providing the best possible care for your patients with FSHD.
Navigate the complexities of genetic testing for FSHD. Learn about the different types of tests, interpretation of results, and genetic counseling considerations.
Explore opportunities to collaborate, access research grants, and contribute to the advancement of FSHD science.
Explore available grant opportunities from the FSHD Society and other funding organizations. Secure the resources you need to conduct groundbreaking research.
Join the FSHD International Research Congress and present your work, network with leading researchers, and contribute to the global effort to find a cure for FSHD.
