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We’re here to help. Whether you have questions about FSHD, need support, or want to learn more about getting involved, we’d love to hear from you. Fill out the form below, and a member of our team will be in touch.

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Need Support? Connect with an FSHD Navigator

Our FSHD Navigators provide one-on-one guidance for individuals and families seeking information, resources, and guidance. If you have questions about managing FSHD or finding expert care, our team is here for you.

Mailing Address

For Donations:
FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

For All Other Mail:
FSHD Society
75 North Main Street, Suite 1073
Randolph, MA 02368

Phone

(781) 301-6060