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Please join us for the first Alberta Chapter Meeting (virtual) on Sunday, March 12th at 10:00am MT via ZOOM! Please RSVP! Come and meet the Chapter Co-Directors, Jennie and Karen Camarta, and hear about our exciting plans to build the FSHD Community in Canada as we prepare for upcoming clinical trials. You can get the latest information about […]
Please join us on Saturday June 24th for a casual breakfast get-together, and for our first in-person meeting of the Alberta Chapter! WHAT: Let us treat you to breakfast, hear some important FSHD updates, and have great conversation. This is a family-friendly event so bring the whole family! WHEN: Saturday June 24th at 9am MT WHERE: […]
Alberta Walk & Roll Saturday, September 9, 2023 Registration at 8:30 a.m. TENTATIVE - RiverWalk Plaza: 618 Confluence Way SE Calgary AB T2G 0G1 Canada Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page […]
** CANCELED ** We are sad to say that due to the lack of RSVP responses, we are canceling the brunch gathering scheduled for this Saturday in Edmonton. Please don't hesitate to reach out, and stay-tuned as we plan other events. Warmly, Jennie Camarta & Karen Camarta FSHD Society Chapter Directors - Alberta Chapter AlbertaChapter@FSHDSociety.org www.FSHDSociety.org […]
The Alberta Chapter invites all Canadian Chapter members to join a virtual meeting on January 9th, 2024! Guest speakers include Amanda Hill, Director of Clinical Research at the FSHD Society, Neil Camarta and Craig Kelly of the FSHD Canada Foundation, and Dr. Dillon Chen of Arrowhead Pharmaceuticals. Amanda will be giving us an update on […]
9:00 a.m. Mountain Time doors open | 10:00-3:00 p.m. MT conference sessions The FSHD Society, in collaboration with FSHD Canada Foundation and the University of Calgary, AB, Canada, is hosting the first-ever Canadian FSHD 360 conference. Dr. Lawrence Korngut and his colleagues will share the latest news on the Canadian clinical trial research network, cutting-edge […]
9:00pm ET | 8:00pm CT | 7:00pm MT | 6:00pm PT British Columbia and Alberta Chapters - Virtual Meeting When: Wednesday April 10th, 6pm PT | 7pm MT Where: Virtually via Zoom, please RSVP below to receive the Zoom link What: We are excited to have special guest Lena Graham joining us! Lena is a […]
CANCELEED Due to the lack of RSVPs, we have sadly decided to cancel this event. One of the goals of our Alberta Chapter is to grow our connections and community in the Edmonton Area. We haven’t been successful in doing this with our last two events, and would love your feedback. What would you like […]
5:30pm MT (4:30pm PT | 7:30pm ET | 6:30pm CT) Alberta Chapter - World FSHD Day Celebration Hello Alberta Chapter Friends!! WHAT: On World FSHD Day, June 20, we are hosting a get-together with our Alberta Chapter members to celebrate the successes we have seen over the last year, and to raise awareness for the […]
2024 Alberta Walk & Roll to Cure FSHD Saturday, September 7, 2024 9:00am at the Riverwalk Plaza, Calgary AB Join us for the second annual Alberta Walk & Roll to Cure FSHD. Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers […]
Alberta Chapter Virtual Meeting All Canadian FSHD Community Members Welcome Wednesday, October 2, 2024 7:00pm - 8:00pm MT RSVP: https://go.fshdsociety.org/l/701273/2023-01-17/42q91r Following the disappointing news from Fulcrum, Neil Camarta will be presenting slides indicating how much is going on regarding FSHD treatments & muscle regeneration (especially here in Canada), letting people know that there are still […]
We are getting together to celebrate World FSHD Day. We are going to meet for drinks and dinner, staying up to see the lighting of the Calgary Tower in ORANGE! Family friendly!
Monday, August 25 5:00pm PT / 6:00pm MT / 7:00pm CT / 8:00pm ET We’re excited to invite you to our next Multi-Chapter Meeting, a virtual event that brings together several FSHD chapters for updates and peer connection. This is part of a new national meeting series designed to strengthen our chapter network and keep […]
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser raising awareness and funds for treatments and a cure for FSHD.
8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT Canada-Wide Online Meeting, hosted by Alberta, providing updates on what is important and relevant to Canadians living with FSHD in 2026. We will have several guest speakers: Neil Camarta to provide updates on FSHD Canada Foundation and the work they are doing. Blaine Penny […]
We’re excited to invite you to our first Multi-Chapter Meeting of 2026 - a virtual event that brings together several FSHD chapters (based on time zone) for updates and peer connection. These meetings are designed to strengthen our chapter network and keep our community informed and connected. April's topic: "Understanding Gene Therapy and AAV technology […]
June 10th, 2026 | 5:00-6:30pm PT Hosted by the British Columbia Chapter THIS IS A MEETING YOU WON'T WANT TO MISS! Eva Chin of SOLVE FSHD will be offering an update along with some exciting news for BC Chapter members! Via Zoom, Eva will get us all up to speed on the progress that was […]
June 18, 2026 | 6:00pm National Westhills (180 Stewart Green SW, Calgary) Chapter get-together to celebrate World FSHD Day (two days early). An opportunity to mix & mingle over dinner. Everyone is welcome! Register Now
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