Remembering Dan Perez, co-founder of the FSHD Society and a driving force in FSHD research and advocacy.

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14 events found.

Tampa Chapter Events

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  2. Tampa Chapter Events

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Today
  • September 2020
  • Mon 14
    Gathering at FSHD Connect
    Featured Sep 14, 2020 @ 5:00 pm - 6:00 pm Wellness Hour (Virtual Meeting)

    Wellness Hour (Virtual Meeting)

    This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). The Wellness Hour is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, […]

  • October 2020
  • Tue 27
    Featured Oct 27, 2020 @ 8:00 pm - 9:00 pm Sharegiver Hour

    Sharegiver Hour

    8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules […]

  • February 2021
  • Tue 23
    Featured Feb 23, 2021 @ 8:00 pm - 9:00 pm Sharegiver Hour

    Sharegiver Hour

    8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules […]

  • April 2021
  • Tue 27
    Featured Apr 27, 2021 @ 8:00 pm - 9:00 pm Sharegiver Hour

    Sharegiver Hour

    8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules […]

  • May 2021
  • Mon 10
    Gathering at FSHD Connect
    Featured May 10, 2021 @ 5:00 pm - 6:00 pm Wellness Hour (Virtual Meeting)

    Wellness Hour (Virtual Meeting)

    This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). The Wellness Hour is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, […]

  • Tue 25
    Featured May 25, 2021 @ 8:00 pm - 9:00 pm Sharegiver Hour

    Sharegiver Hour

    8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules […]

  • June 2021
  • Mon 14
    Gathering at FSHD Connect
    Featured Jun 14, 2021 @ 5:00 pm - 6:00 pm Wellness Hour (Virtual Meeting)

    Wellness Hour (Virtual Meeting)

    This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). The Wellness Hour is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, […]

  • October 2021
  • Tue 26
    Featured Oct 26, 2021 @ 8:00 pm - 9:00 pm Sharegiver Hour

    Sharegiver Hour

    8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules […]

  • February 2023
  • Sun 19
    Feb 19, 2023 @ 4:00 pm - 6:00 pm

    Tampa Chapter Meeting

    True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

    Dear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our time together out on the patio. This will be an informal gathering, with no particular agenda - but we'd love to hear your ideas or […]

  • June 2023
  • Sun 11
    FSHD Society Chapter Meeting image with people gathered
    Jun 11, 2023 @ 4:00 pm - 5:30 pm

    Tampa Chapter Gathering

    True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

    Tampa Chapter Gathering Sunday, June 11th, 4pm True Food Kitchen 3645 Midtown Dr, Tampa, FL 33607   Dear friends, Please come out and join us for another great get-together of the Tampa Chapter! We’ll be meeting back at True Food Kitchen. Please RSVP below by June 2nd so that we can make sure there’ll be […]

  • August 2024
  • Thu 15
    Danny Kurtzman, right, as Danny, and Brett Dier, as Jason, in Shane Stanger's "Good Bad Things"
    Featured Aug 15, 2024

    Good Bad Things Theatrical Premiere

    Theaters Near You

    Good Bad Things Theatrical Premiere For nearly a year, we’ve been following the journey of "Good Bad Things," and now, the award-winning film starring Danny Kurtzman, who lives with FSHD, will be screened in 50 AMC Theaters across the US on August 15th! "Good Bad Things" brings authentic disability representation to the big screen, challenging […]

  • Tue 27
    FSHD Virtual Chapter Meeting
    Aug 27, 2024 @ 6:00 pm - 7:00 pm

    Southeast Multi-Chapter Virtual Meeting

    Southeast Multi-Chapter Virtual Meeting Tuesday, August 27, 2024 at 6:00pm ET Amy Halseth and Erika Escartin from Avidity Biosciences will give a short presentation on the recent data from FORTITUDE, followed by an open Q&A session about participating in clinical trials, the drug development process, the potential new drugs that are in the pipeline, or […]

  • June 2025
  • Wed 25
    Jun 25 @ 7:00 pm - 8:00 pm 2025 Chapter Meetings

    ALL East Coast Chapter Meeting

    Zoom Virtual Meeting , United States

    We’re excited to pilot a new regional meeting format designed to bring more of our FSHD community together. This meeting is for the East Coast and will cover general updates and include regional breakout sessions.

  • August 2025
  • Tue 26
    Featured Aug 26 @ 6:00 pm - 7:30 pm 2025 Chapter Meetings

    Eastern & Central Time Zones Chapter Meeting

    Zoom Virtual Meeting , United States

    Tuesday, August 26 7:00pm ET / 6:00pm CT / 5:00pm MT / 4:00pm PT We’re excited to invite you to our next Multi-Chapter Meeting, a virtual event that brings together several FSHD chapters for updates and peer connection. This is part of a new national meeting series designed to strengthen our chapter network and keep […]

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