First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We're starting the year off by discussion about spreading our wings with ancillary groups. we'll also be sharing favorite life hacks and what's on our minds - setting our agenda for the coming year. We […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Thanks to our members for responding to our annual survey! Based on your feedback, this month's discussion topics revolve around planning for next steps: What to do when your current care giving plan isn’t working […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a presentation on menopause and women with FSHD, from Drs. Thornburg and Mitchell Linder, from the University of Rochester Medical Center, Ob-Gyn department. This is our second presentation from Dr. Thornburg. We […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our discussion on what to do when your current care plan isn't working anymore. As always, expect a wealth of practical tips, sympathy, and the supportive company of awesome women. […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month's discussion will focus on promoting a positive outlook. Staying positive can be challenging while one is dealing with uncertainty and experiencing emotional needs of lifestyle changes. How do we cope with the pain […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month's conversation topic is "How to keep a meaningful life in retirement or when you need to stop working." Many of us find fulfillment, identify, and a sense of mattering through our work outside […]
First Wednesday of every month* 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT *Note we have changed the date to July 10 due to the July 4 holiday. Our July topic will be: How to manage when our assistive devices cannot get us into a building, how to […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We'll be discussing a variety of topics that have been raised recently: The types of providers we use to take care of our unique needs Managing fatigue How to maintain a sense of humor when […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will talk about the challenges of making and keeping friends, in light of our many mobility challenges and potential location changes AND how to cope with the jealousy that may creep up […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT UPDATE: We have reschedule for October 9 due to Rosh Hashanah falling on October 2 this year. After a move or new environment, we have to adjust to a new environment, including costs for personal […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT There was so much to discuss in last month's WOW meeting about the challenges of moving to a new place that we decided to continue to conversation this month. Adjusting to a new environment, including […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, Jane Nemke will provide a presentation on Exploring the Impact of Color on Human Perception and Emotion. A long time member of our community, Jane is an accredited International Association Color Consultant. She […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Today we'll have an open discussion, starting with the topic of "new year, new opportunities." Ranae, our moderator, will also sharing something related to what we talk frequently about... what do all the terms related to […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We're thrilled to welcome this month's guest, Marjorie Aunos, PhD, a psychologist, researcher, professional speaker, and consultant on accessibility and inclusion. She teaches organizations to solution-find and build environments that are accessible, inclusive, and welcoming […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate. This is our […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate. This is our […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, Kathy Senecal is providing a session on yoga breathing techniques. She will be targeting diaphragmatic, energy, sleep, and stress- reducing techniques. Include a photo of her (in Media Library) is possible. We will […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We’re thrilled to welcome this month’s guest, Marjorie Aunos, PhD, a psychologist, researcher, professional speaker, and consultant on accessibility and inclusion. She teaches organizations to solution-find and build environments that are accessible, inclusive, and welcoming […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate. This is our […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate. This is our […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Kathy Senecal will provide Part II of Yogic Breathing Techniques. If you missed part I please don’t hesitate to join us. Kathy is excellent and will provide the tools we need to fully participate. We […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Come and learn about the many different forms of adaptive sports there are out there... from someone who has enjoyed so many of them... successfully. Presented by our own Dee Squire! We will open […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate. This is our […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Open Discussion, bring your topics to discuss. We will also look into the 2026 Calendar, topic wishes and more. We will open 30 minutes earlier than the official start time, for an open forum to […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be joined by Anna Gilmore, Chief Program Officer at the FSHD Society who will provide us with a mini session on lobbying and working with your local, state, and national legislators. […]
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Gifts of the Hands, Heart, and Head Join us for a Women on Wellness Gathering Place session focused on navigating grief while recognizing the strengths that emerge through adaptation. Together, we’ll reflect on how the […]
Moderator: Ranae Beeker Join us for our March Women on Wellness Gathering Place as we explore the important role nutrition plays in supporting both physical strength and emotional health. Together, we’ll discuss how key nutrients can help sustain energy, support muscle function, and promote overall well-being while living with FSHD. This session will offer a […]
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT At this month's meeting we will discuss how to feel more proficient with Zoom to promote ease of interaction during our Zoom meetings. Please note that per the request of the attendees in this group, only women with FSHD are […]
Women on Wellness - May Meeting May 6, 2026 at 4:30 PM ET/ 3:30 CT/ 2:30 MT/ 1:30 PT This session focuses on our strengths and how we use adaptation to maneuver through the seasons and storms of our lives. Focusing on how we use the gifts of our hands, heart, and head. Please remember […]
June 2026 Women on Wellness Meeting June 3, 2026 5:00 PM ET / 4:00 CT / 3:00 MT / 2:00 PT A Combined Wellness Hour and WOW community Gathering to: Share our memories, thoughts, grief, and of course, affection for Ora Prilleltensky. All are welcome Register Now
July 1, 2026 5:00pm ET/ 4:00 CT / 3:00 MT / 2:00 PT This month, we will discuss "Tips and Tricks for Resourceful Living". Bring a challenge that we can brainstorm together. We'll share ways we can make our lives easier as we navigate life with FSHD. Example topics include: Bedding Bathing Toileting Cooking Eating […]
5:00pm ET/ 4:00 CT / 3:00 MT / 2:00 PT Eating Well This month we'll have an open discussion about diet, cooking, and food shopping. We'll talk about food that we are able to cook, recipes we can easily follow, ability or ease of use with kitchen equipment, and how we can eat healthy and […]
Sept 2, 2026 | 4:30-6:00pm ET Aging in the Right Place Sometimes what we want and what's best for us don't always match. That case is usually true when it comes to "aging in place". Most of us would like to stay in our own current home. However, choosing a place that best supports our […]
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