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3 events found.

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June 2025

Thu 26
Featured Featured Jun 26 @ 5:00 pm - 6:00 pm Event Series FSHD University

FSHD University – Breathing with FSHD

Zoom Web Conference , United States

Breathing with FSHD Thursday, June 26 5:00pm ET | 4:00pm CT | 3:00pm MT | 2:00pm PT Note: This webinar is not at our usual time due to Dr. Benditt’s clinic schedule. Joshua Benditt, MD, University of Washington, is a professor of pulmonary, critical care and sleep medicine at the UW School of Medicine. As […]

July 2025

Thu 17
FSHD University
Featured Featured Jul 17 @ 1:00 pm - 2:00 pm Event Series FSHD University

FSHD University – The Role of the Physiatrist in Managing FSHD

Zoom Web Conference , United States

The Role of the Physiatrist in Managing FSHD Thursday, July 17 19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Most people with FSHD have heard they should see a neurologist. But when we advise them to also establish care with a physiatrist, […]

August 2025

Thu 21
Featured Featured Aug 21 @ 1:00 pm - 2:00 pm Event Series FSHD University

FSHD University – The Burden of FSHD

Zoom Web Conference , United States

19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The Burden of FSHD Despite the significant disease burden, little has been published on the costs associated with a diagnosis of FSHD to the healthcare and payor systems. Most previous studies examining FSHD-associated costs […]

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