Our look is new. Our purpose is the same. Learn more about our brand evolution.
Tour de Tucson - November 22, 2025 El Tour de Tucson is now preparing to host the 42nd year for what we think is one of the premier bicycling events in the country. We hope you participate in this year’s event on November 22, 2025. You won’t be alone given that annually 10,000 cyclists participate […]
Young Adults Monthly Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re […]
Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and […]