
Read our latest issue
Get inspired, informed, and involved—dive into the latest stories and breakthroughs driving progress for the FSHD community.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Published three times per year, the FSHD Advocate is the voice of our community, educating and empowering us all to take control of our FSHD journey and power the path towards a cure. Each issue provides the latest research news, stories about our movers and shakers, practical tips for living with FSHD, resources, and more.
Get inspired, informed, and involved—dive into the latest stories and breakthroughs driving progress for the FSHD community.
Come join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSHD awareness and treatments..
Interested in reading more? Check out our previous issues of FSHD Advocate in our Patient Library by typing “Advocate” into the library search bar.