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Today

February 2023

Wed 1
Featured Featured Feb 1 @ 5:00 pm - 6:00 pm

Women on Wellness: Life Hacks

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »

Thu 9
Featured Featured Feb 9 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: postural changes

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join physiotherapist Ulrike Uta of the... Read More »

Mon 13
Wellness Hour
Featured Featured Feb 13 @ 5:00 pm - 6:00 pm Event Series Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be joined by crisis counselors Kylee Helmke and Andrea Morales to... Read More »

Tue 14
Featured Featured Feb 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 14
Featured Featured Feb 14 @ 1:00 pm - 2:00 pm

FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD

Zoom Web Conference

Learn about the FDA's recent fast track designation for Avidity's FSHD therapeutic here. 1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Feb 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Feb 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, February 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Feb 23 @ 12:00 pm - 1:30 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Postural Changes Part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ulrike Uta will join us to... Read More »

Thu 23
FSHD University Logo
Featured Featured Feb 23 @ 2:00 pm - 3:00 pm

FSHD University – Rita Perlingeiro on stem cell research

1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT | 18:00 UK | 19:00 CET Dr. Rita Perlingeiro Our webinar speaker is Dr. Rita... Read More »

Tue 28
Featured Featured Feb 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is continuing last month's talk about How do we take care of... Read More »

Tue 28
Featured Featured Feb 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

March 2023

Wed 1
Featured Featured Mar 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Keeping up appearances

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our conversations about Challenges (and... Read More »

Thu 9
Featured Featured Mar 9 @ 12:00 pm - 1:30 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Mon 13
Wellness Hour
Featured Featured Mar 13 @ 5:00 pm - 6:00 pm Event Series Wellness Hour

Wellness Hour – “Movie Night”

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will discuss a film, I Didn’t See You There. The idea is... Read More »

Tue 14
Featured Featured Mar 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 14
Featured Featured Mar 14 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Mar 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Mar 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Mar 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Thu 23
FSHD University Logo
Featured Featured Mar 23 @ 1:30 pm - 2:30 pm

FSHD University: Novel treatment strategies for FSHD

Zoom web conference

1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »

Sat 25
Featured Featured Mar 25 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Mon 10
Wellness Hour
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm

Wellness Hour – All about wheelchairs

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is all about wheelchairs. How do you know when you need... Read More »

Tue 11
FSHD Society Radio logo with microphone
Featured Featured Apr 11 @ 8:00 am

FSHD Radio: Community Profiles with Musician Apex Frazier

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 11
Featured Featured Apr 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals: FSHD Journeys & Encouragement

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Wed 12
Featured Featured Apr 12 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Looking good!

Zoom Virtual Meeting

UPDATED: Date changed this month because of Passover 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our conversations about... Read More »

Thu 13
Featured Featured Apr 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Lower extremities

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “During a check-up, the doctor asked me... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Apr 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable – Special Needs Financial Planning

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Special Needs Planning Beyond One Day at a Time As a special needs family, living... Read More »

Sat 22
Featured Featured Apr 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals: What You Need to Know about Clinical Trials

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Apr 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Wed 26
Featured Featured Apr 26 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Lower extremities Part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT NOTE DATE CHANGE FROM April 27 to... Read More »

Thu 27
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Apr 27 @ 8:00 am

FSHD Radio: Hot off the Press with Amanda Hill on the New Era of Clinical Trials

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

May 2023

Wed 3
Featured Featured May 3 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Managing fatigue

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Fatigue is one of the biggest challenges we face, and... Read More »

Thu 4
FSHD University Logo
Featured Featured May 4 @ 1:00 pm - 2:00 pm

FSHD University: MANOUEVRE clinical trial

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT In October 2022, Roche/Genentech shared with us plans to initiate a new trial called MANOEUVRE. This... Read More »

Mon 8
Wellness Hour
Featured Featured May 8 @ 5:00 pm - 6:00 pm

Wellness Hour on Friendship: The Elixir of Life

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT In the last few months, a raft of articles have been published on the topic... Read More »

Tue 9
FSHD Society Radio logo with microphone
Featured Featured May 9 @ 8:00 am

FSHD Radio: Community Profiles – All About Adoption

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 9
Featured Featured May 9 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals: Five Approaches to FSHD and Fitness

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 11
Featured Featured May 11 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Training with Mitch Wade

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Mitch Wade This month, we're excited to... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured May 16 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable: Speech and swallowing

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Kiera Berggren Children with early-onset FSHD often struggle with speech and swallowing due to weak... Read More »

Thu 18
FSHD University Logo
Featured Featured May 18 @ 1:00 pm - 2:00 pm

FSHD University: What every newly diagnosed person should know

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »

Thu 25
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured May 25 @ 9:00 am

FSHD Radio: Hot off the Press – World FSHD Day Plans with Leigh Reynolds

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 25
Featured Featured May 25 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Chair Yoga

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Donna Russo has been promoting adaptive yoga... Read More »

Sat 27
Featured Featured May 27 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals: Virtual Escape Room Social Hour

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT Join us for a virtual escape room! For this Saturday meeting, we’ll solve puzzles together... Read More »

Tue 30
Featured Featured May 30 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

June 2023

Wed 7
Featured Featured Jun 7 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Instrumental activities of daily living

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is what we call "Instrumental ADL’s... Read More »

Thu 8
Featured Featured Jun 8 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 12
Wellness Hour
Featured Featured Jun 12 @ 5:00 pm - 6:00 pm

Wellness Hour Movie Night – Crip Camp

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Change of topic! Instead  of Happy Hour, this month we will enjoy another Movie Night... Read More »

Tue 13
FSHD Society Radio logo with microphone
Featured Featured Jun 13 @ 8:00 am

FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 13
Featured Featured Jun 13 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 15
Featured Featured Jun 15 - Jun 16

30th Annual International Research Congress on FSHD

Radisson Blu Milan Italy Milan

SAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »

Tue 20
Featured Featured Jun 20 @ 12:00 am - 11:59 pm

World FSHD Day!

Virtual Denver

Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our... Read More »

Tue 20
Early-Onset Parents Roundtable
Featured Featured Jun 20 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable – Sharon Terry: mom, advocate, change-maker

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Sharon F. Terry, President and CEO of Genetic Alliance,... Read More »

Thu 22
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jun 22 @ 9:00 am

FSHD Radio: Hot off the Press – IRC 2023 Recap

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 22
Featured Featured Jun 22 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 24
Featured Featured Jun 24 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 27
Featured Featured Jun 27 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

July 2023

Wed 5
Featured Featured Jul 5 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Wellness Hour
Featured Featured Jul 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
FSHD Society Radio logo with microphone
Featured Featured Jul 11 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 11
Featured Featured Jul 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 13
Featured Featured Jul 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Jul 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 20
FSHD University Logo
Featured Featured Jul 20 @ 1:00 pm - 2:00 pm

FSHD University: MOVE and MOVE+ Update

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT MOVE and MOVE+ are the largest natural history studies to date of FSHD. Our webinar will... Read More »

Sat 22
Featured Featured Jul 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Jul 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jul 27 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

August 2023

Wed 2
Featured Featured Aug 2 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Tue 8
FSHD Society Radio logo with microphone
Featured Featured Aug 8 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 8
Featured Featured Aug 8 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 10
Featured Featured Aug 10 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 14
Wellness Hour
Featured Featured Aug 14 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 15
Early-Onset Parents Roundtable
Featured Featured Aug 15 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 24
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Aug 24 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 24
Featured Featured Aug 24 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 26
Featured Featured Aug 26 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 29
Featured Featured Aug 29 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

September 2023

Wed 6
Featured Featured Sep 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Wellness Hour
Featured Featured Sep 11 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Sep 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 12
Featured Featured Sep 12 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 14
Featured Featured Sep 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Sep 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 23
Featured Featured Sep 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 9
Wellness Hour
Featured Featured Oct 9 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 10
FSHD Society Radio logo with microphone
Featured Featured Oct 10 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 10
Featured Featured Oct 10 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 12
Featured Featured Oct 12 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 17
Early-Onset Parents Roundtable
Featured Featured Oct 17 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 26
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Oct 26 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 26
Featured Featured Oct 26 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 28
Featured Featured Oct 28 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 31
Featured Featured Oct 31 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

November 2023

Wed 1
Featured Featured Nov 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

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