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Today

June 2022

Sat 18
Featured Featured Jun 18, 2022 @ 9:00 am - 10:00 am

Early-Onset Parent Roundtable

Virtual Denver

Saturday, June 18 - Special FSHD Connect edition 9:00 AM ET | 8:00 AM CT | 7:00 AM MT | 6:00 AM PT This month we are meeting live with... Read More »

Tue 28
Featured Featured Jun 28, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour: We need a vacation!

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT How can you enjoy a real vacation when you're caught up with concerns about caring for... Read More »

July 2022

Wed 6
Featured Featured Jul 6, 2022 @ 5:00 pm - 6:00 pm Event Series Women on Wellness – Transitions in mobility

Women on Wellness – Transitions in mobility

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »

Mon 11
Wellness Hour
Featured Featured Jul 11, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour – How do I talk to my family about FSHD?

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT FSHD is a familial condition, and yet family members can hold different attitudes about how... Read More »

Tue 19
Featured Featured Jul 19, 2022 @ 7:00 pm - 8:00 pm

Early-Onset Parent Roundtable

Virtual Denver

Tuesday, July 19th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Tue 26
Featured Featured Jul 26, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour: Helping with self-care

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »

August 2022

Wed 3
Featured Featured Aug 3, 2022 @ 5:00 pm - 6:00 pm

Women on Wellness – Transitioning to assistive devices

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our discussions about transitioning to assistive... Read More »

Wed 3
Featured Featured Aug 3, 2022 @ 5:00 pm - 6:00 pm Event Series Women on Wellness – Transitions in mobility

Women on Wellness – Transitions in mobility

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »

Sun 7
GenZ Calendar Feature
Featured Featured Aug 7, 2022 @ 3:00 pm - 4:00 pm

GenZ of FSHD – Fundraising is empowering

Zoom Virtual Meeting

3:00 PM ET 2:00 PM CT | 1:00 PM MT | 12:00 PM PT This month, we'll be talking about fundraising! Maybe this sounds intimidating, but learning how to get... Read More »

Mon 8
Wellness Hour
Featured Featured Aug 8, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour: Getting to know us

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we'd like to have some fun and give our growing group a chance... Read More »

Tue 16
Featured Featured Aug 16, 2022 @ 7:00 pm - 8:00 pm

Early-Onset Parent Roundtable

Virtual Denver

Tuesday, August 16th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Tue 30
Featured Featured Aug 30, 2022 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour: Helping with self-care

CarePartner Hour: Helping with self-care

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »

Tue 30
Featured Featured Aug 30, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour – Purchasing equipment

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT We're going to cover two topics this month. The first topic is "Have you purchased equipment... Read More »

September 2022

Wed 7
Featured Featured Sep 7, 2022 @ 5:00 pm - 6:00 pm

Women on Wellness: Chair yoga and self-compassion

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month is all about self-care. Donna Russo will lead... Read More »

Thu 8
Featured Featured Sep 8, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD – Abs and Breathing

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet... Read More »

Mon 12
Wellness Hour
Featured Featured Sep 12, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour – Sharing your FSHD diagnosis with your family

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be discussing how to talk about an FSHD diagnosis with family... Read More »

Tue 20
Featured Featured Sep 20, 2022 @ 7:00 pm - 8:00 pm

Early-Onset Parent Roundtable

Virtual Denver

Tuesday, September 20th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Thu 22
Featured Featured Sep 22, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD – Abs and Breathing Part 2

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Our meeting on Sept. 8 focused on techniques to strengthen the abs and breathing.... Read More »

Tue 27
Featured Featured Sep 27, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour – Talking to family and friends

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is "Talking about FSHD with family and friends." Sharing a diagnosis when... Read More »

October 2022

Wed 5
Featured Featured Oct 5, 2022 @ 5:00 pm - 6:00 pm

Women on Wellness – Pelvic floor issues

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will have a physical therapist who specializes... Read More »

Mon 10
Wellness Hour
Featured Featured Oct 10, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour – Coping strategies

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, join us for a discussion on coping with the changes brought about by... Read More »

Thu 13
Featured Featured Oct 13, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD – Low-impact seated exercises

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet... Read More »

Tue 18
Featured Featured Oct 18, 2022 @ 7:00 pm - 8:00 pm

Early-Onset Parent Roundtable – Children and mental health

Virtual Denver

Tuesday, October 18th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Tue 25
Featured Featured Oct 25, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour – Planning for the future

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Oct 27, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD – Low-impact seated exercises Part 2

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet... Read More »

November 2022

Wed 2
Featured Featured Nov 2, 2022 @ 5:00 pm - 6:00 pm

Women on Wellness: Self-compassion

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month's topic is Self-Compassion, with an emphasis on providing... Read More »

Thu 10
Featured Featured Nov 10, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: Neck and shoulder exercises

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In the November “Feeling Fit” sessions, Frank Hanley will introduce a variety of neck... Read More »

Mon 14
Wellness Hour
Featured Featured Nov 14, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour: Staying warm with FSHD

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT As the weather gets colder (at least in the northern hemisphere), we turn to a... Read More »

Tue 15
Featured Featured Nov 15, 2022 @ 7:00 pm - 8:00 pm

Early-Onset Parent Roundtable – Gene therapies for FSHD

Virtual Denver

Tuesday, November 15th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Mon 21
Featured Featured Nov 21, 2022 @ 12:00 pm - 1:00 pm

Feeling Fit with FSHD: Neck and shoulder exercises part 2

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In the November “Feeling Fit” sessions, Frank Hanley will introduce a variety of neck... Read More »

Tue 29
Featured Featured Nov 29, 2022 @ 10:00 am - 7:00 pm

FSHD Radio – Giving Tuesday Radiothon

Facebook Live

Tim Hollenback, FSHD Radio host #GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On Tuesday, November 29th, we... Read More »

Tue 29
Featured Featured Nov 29, 2022 @ 8:00 pm - 9:00 pm

CarePartner Hour: Asking for outside help

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month: How do we decide when/if we need outside help either part time... Read More »

December 2022

Wed 7
Featured Featured Dec 7, 2022 @ 5:00 pm - 6:00 pm

Women on Wellness: On Mattering

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a... Read More »

Thu 8
Featured Featured Dec 8, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: Qigong for immune system and energy

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never takes a day off. I practice qigong... Read More »

Mon 12
Wellness Hour
Featured Featured Dec 12, 2022 @ 5:00 pm - 6:00 pm

Wellness Hour: Holiday revels

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations... Read More »

Thu 22
Featured Featured Dec 22, 2022 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: Qigong for immune function and energy

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In the December “Feeling Fit” sessions, Frank Hanley will introduce several qigong exercises to... Read More »

Tue 27
Featured Featured Dec 27, 2022 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

January 2023

Wed 4
Featured Featured Jan 4 @ 5:00 pm - 6:00 pm

Women on Wellness: Dealing with depression

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We will continue the conversation that we started last month... Read More »

Mon 9
Wellness Hour
Featured Featured Jan 9 @ 5:00 pm - 6:00 pm

Wellness Hour: Managing Pain

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Have you experienced pain as part of your FSHD? What has helped? What are your... Read More »

Thu 12
Featured Featured Jan 12 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD – Lonwabo’s physical rehab journey

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Lonwabo Nene Join us this month as Lonwabo Nene explains his physical rehab journey... Read More »

Tue 17
Featured Featured Jan 17 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

Tuesday, January 17th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »

Thu 26
Featured Featured Jan 26 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: Lonwabo’s journey Part 2

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Lonwabo Nene Join us for Q&A and discussion to follow up on Lonwabo Nene's... Read More »

Tue 31
Featured Featured Jan 31 @ 8:00 pm - 9:00 pm

CarePartner Hour: What are your “needs”?

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT What does your partner need from you or someone who helps with their care? This came... Read More »

February 2023

Wed 1
Featured Featured Feb 1 @ 5:00 pm - 6:00 pm

Women on Wellness: Life Hacks

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »

Thu 9
Featured Featured Feb 9 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: postural changes

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join physiotherapist Ulrike Uta of the... Read More »

Mon 13
Wellness Hour
Featured Featured Feb 13 @ 5:00 pm - 6:00 pm Event Series Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be joined by crisis counselors Kylee Helmke and Andrea Morales to... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Feb 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Feb 23 @ 12:00 pm - 1:30 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Postural Changes Part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ulrike Uta will join us to... Read More »

Tue 28
Featured Featured Feb 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is continuing last month's talk about How do we take care of... Read More »

Tue 28
Featured Featured Feb 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

March 2023

Wed 1
Featured Featured Mar 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Keeping up appearances

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our conversations about Challenges (and... Read More »

Thu 9
Featured Featured Mar 9 @ 12:00 pm - 1:30 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Mon 13
Wellness Hour
Featured Featured Mar 13 @ 5:00 pm - 6:00 pm Event Series Wellness Hour

Wellness Hour – “Movie Night”

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will discuss a film, I Didn’t See You There. The idea is... Read More »

Tue 14
Featured Featured Mar 14 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Mar 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Mar 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Sat 25
Featured Featured Mar 25 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Mon 10
Wellness Hour
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Apr 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Wed 12
Featured Featured Apr 12 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Looking good!

Zoom Virtual Meeting

UPDATED: Date changed this month because of Passover 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our conversations about... Read More »

Thu 13
Featured Featured Apr 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Apr 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 22
Featured Featured Apr 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Apr 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Apr 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

May 2023

Wed 3
Featured Featured May 3 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 8
Wellness Hour
Featured Featured May 8 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 9
Featured Featured May 9 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 11
Featured Featured May 11 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured May 16 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 25
Featured Featured May 25 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 27
Featured Featured May 27 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 30
Featured Featured May 30 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

June 2023

Wed 7
Featured Featured Jun 7 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 8
Featured Featured Jun 8 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 12
Wellness Hour
Featured Featured Jun 12 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 13
Featured Featured Jun 13 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 20
Early-Onset Parents Roundtable
Featured Featured Jun 20 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 22
Featured Featured Jun 22 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 24
Featured Featured Jun 24 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 27
Featured Featured Jun 27 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

July 2023

Wed 5
Featured Featured Jul 5 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Wellness Hour
Featured Featured Jul 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Jul 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 13
Featured Featured Jul 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Jul 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 22
Featured Featured Jul 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Jul 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

August 2023

Wed 2
Featured Featured Aug 2 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Tue 8
Featured Featured Aug 8 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 10
Featured Featured Aug 10 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 14
Wellness Hour
Featured Featured Aug 14 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 15
Early-Onset Parents Roundtable
Featured Featured Aug 15 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 24
Featured Featured Aug 24 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 26
Featured Featured Aug 26 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 29
Featured Featured Aug 29 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

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