Tampa Chapter Meeting

True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

Dear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our... Read More »

Ontario Virtual Chapter Meeting

Virtual TX, United States

Saturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A... Read More »

San Diego Brew Quest to Cure FSHD

San Diego San Diego, CA, United States

March 9 - 26 Brew Quest – A Quest to Cure FSHD Fundraising for FSHD Society Discover new breweries around the Kearny Mesa/Miramar/Mira Mesa area while supporting our organization. At... Read More »

East TN Chapter Meeting

East Tennessee knoxville, TN, United States

Come meet us! East TN Chapter Meeting Tuesday, March 21, 2023 5:00pm - 6:00pm Eastern Time ​Cedar Bluff Branch Library Cedar Bluff Meeting Room 9045 Cross Park Drive Knoxville, TN... Read More »

Greater Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United States

Come meet us! Greater Philadelphia Chapter Meeting Saturday, March 25, 2023 10:00am - 12:00pm Eastern Time ​Wissahickon Valley Public Library 650 W Skippack Pike Blue Bell, PA 19422 Or via... Read More »

North Texas Happy Hour

Down South Kitchen & Bakery 6500 Cascades CT Ste. 100, The Colony, TX, United States

Chapter Happy Hour Saturday, March 25, 2023 11:30am - 1:30pm CT Down South Kitchen & Bakery 6500 Cascades CT Ste. 100 The Colony, TX 75056 Dear Friends, Please mark your... Read More »

Houston Area Happy Hour

Johnny Tamales Cantina 4647 East Sam Houston Pkwy S, Pasadena, TX, United States

Chapter Happy Hour Sunday, March 26, 2023 3:30pm - 5:30pm CT Johnny Tamales Cantina 4647 East Sam Houston Pkwy S Pasadena, TX 77507 Please mark your calendars for the Houston-area... Read More »

New Hampshire Virtual Catch-Up

Zoom Virtual Meeting , United States

Wednesday, March 29th, 2023 8pm ET | 7pm CT | 6pm MT | 5pm PT Via Zoom: Invite Link Invite Link https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, It’s been such a long time... Read More »

Central Texas Chapter Happy Hour

District Kitchen & Cocktails 7858 Shoal Creek Blvd, Ste. B, Austin, TX, United States

Chapter Happy Hour Saturday, April 1, 2023 3:30pm - 5:30pm CT District Kitchen & Cocktails (Anderson Lane Location) 7858 Shoal Creek Blvd, Ste. B Austin, TX 78757 Please mark your... Read More »

Colorado Chapter Meeting and Social Gathering!

Lariat Lodge Brewing Company 12684 W Indore Pl, Littleton, CO, United States

Please JOIN US for our first Chapter meeting and social gathering of 2023, and to personally welcome our new Chapter Director, Kurt Spiegel! Sunday April 2nd, 2023: 3pm - 5pm Lariat... Read More »

Nevada Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Nevada Virtual Chapter Meeting 7:00 PM to 8:00 PM PT Join us on Zoom as we introduce Leslie Truman as our new Nevada Chapter Director! RSVP with the link below... Read More »

New England Chapter Movie Night & Discussion

Zoom Virtual Meeting , United States

Wednesday, April 12th, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/83644567187?pwd=MnhSd0lPTVdUQlZYYzhhQ0VCdEI1UT09 Dear friends, I’d like to invite you join me for a lively... Read More »

Northeast Florida Chapter Brunch

NE Florida Jacksonville, FL, United States

Northeast Florida Chapter Brunch Saturday, April 22nd; 11am - 2pm Noura's Cafe, 1533 University Blvd W, Jacksonville FL 32217 Dear Friends, We hope you can join us for Saturday, April... Read More »

Canceled North Carolina Chapter Lunch

Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NC, United States

This event has been canceled.

All-Texas Chapter Meeting: Travel Tips

Zoom Virtual Meeting , United States

For this All-Texas Chapter Meeting we will be joined by guest Debra Kerber from Easy Access Travel. She'll be giving us tips on accessible travel! RSVP below.

Idaho Talent Fest 2023!

Boise State University Special Events Center 1800 W. University Drive, Boise, ID, United States

Idaho Talent Fest 2023 - Saturday, April 29th Join us April 29th at the Boise State University's Special Events Center for the 3rd Annual Idaho Talent Fest to Cure FSH Muscular Dystrophy presented... Read More »

British Columbia Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Hello BC Friends! Please join us for a virtual meeting on May 3rd, 2023 at 6pm PT! Our guest speaker will be Dr. Jamshid Arjomand, Chief Science Officer at the... Read More »

Michigan Chapter – Inaugural Meeting!

Zoom Virtual Meeting , United States

Join us virtually as we launch our new Michigan Chapter! Come to meet our new Chapter Director, Cassie Harris, to get to know one another, and to find out about... Read More »

Connecticut Connections Reunion

Zoom Virtual Meeting , United States

Connecticut Connections Reunion Wednesday, May 31st, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, Please join us for a virtual reunion... Read More »

Ontario Chapter Meeting

Symposium Cafe 3055 Dundas St W, Mississauga, Ontario, Canada

Join us for an informal breakfast/brunch gathering! Saturday, June 10th, 2023 - 11:00am ET Symposium Cafe: 3055 Dundas St W in Mississauga Dear Ontario friends, Come join your fellow Ontario FSHDers for... Read More »

Bay Area Chapter Meeting

Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United States

Bay Area Chapter Meeting Sunday, June 11, 2023 1:00-3:00 pm PT Hoover Pavilion, Room 208 Stanford Campus Quarry Road, Palo Alto Let's meet together in-person (or Zoom) so that we can catch up... Read More »

Tampa Chapter Gathering

True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

Tampa Chapter Gathering Sunday, June 11th, 4pm True Food Kitchen 3645 Midtown Dr, Tampa, FL 33607   Dear friends, Please come out and join us for another great get-together of... Read More »

New York City/NJ Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New York City/NJ - Area Chapter Tuesday, June 13, 2023 7:00pm ET via Zoom ​ We hope you can join us for a virtual chapter meeting! We will be discussing... Read More »

PNW Chapter World FSHD Day & Father’s Day Celebration

Cheney Stadium 2502 South Tyler Street, Tacoma, WA, United States

Celebrate World FSHD Day & Father’s Day at the ballpark with the PNW Chapter! Saturday, June 17, 2023 6:00pm Cheney Stadium, Tacoma Tacoma Rainiers vs. Albuquerque Isotopes After you register,... Read More »

British Columbia Chapter World FSHD Day Celebration

The Pint 455 Abbott St., Vancouver, British Columbia, Canada

Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel - Convention Centre : 876-1055 Canada Place, Vancouver,... Read More »

Atlanta Chapter World FSHD Day Watch Party

Azteca Perimiter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs, GA, United States

Join us for the Atlanta Chapter Watch Party as the King & Queen Buildings light up orange in honor of World FSHD Day! Tuesday, June 20, 2023 7:30pm ET El... Read More »

Western PA Chapter Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Meeting Wednesday, June 21 6:30 – 8:00pm ET Please join us for a virtual meeting of the Western PA Chapter to chat among ourselves, plan our family... Read More »

Idaho Chapter Meeting

Louie's Pizza and Italian Restaurant 2500 E Fairview Ave, Meridian, ID, United States

Idaho Chapter Meeting Thursday, June 22, 2023 6:30pm MT Louie's Pizza and Italian Restaurant at 2500 E Fairview Ave, Meridian, ID 83642 Join us for dinner! This will be an... Read More »

Alberta Chapter Meeting

1101 8th Street SE in Calgary, Alberta 1101 8th Street SE, Calgary, Alberta, Canada

Please join us on Saturday June 24th for a casual breakfast get-together, and for our first in-person meeting of the Alberta Chapter! WHAT: Let us treat you to breakfast, hear some... Read More »

FSHD Lab Day at Nationwide Children’s Hospital

Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus, OH, United States

Please join the Columbus Chapter and Nationwide Children's Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then... Read More »

Heartland Chapter Happy Hour

Boulevard Beer Hall 2534 Madison Ave, Kansas City, MO, United States

Heartland Chapter Happy Hour Friday, July 28, 2023 3:30 pm - 5:30 pm CT Boulevard Beer Hall - 2534 Madison Ave, Kansas City, MO 64108 Join us for an afternoon... Read More »

Western PA Summer Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA, United States

Western PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year... Read More »

Mountain State Chapter Meeting

Zoom Virtual Meeting , United States

Mountain State Chapter Meeting Tuesday, August 15, 2023 5:30 pm - 6:30 pm PT | 6:30 pm - 7:30 pm MT Join us for a special chapter meeting for all Mountain... Read More »

Sacramento Chapter Meeting

Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA, United States

DATE: Saturday, August 19, 2023 TIME: 5:00 pm - 7:00 pm PT WHERE: Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825 Join us for an in-person get-together where you will have the chance... Read More »

CenTex Virtual Chapter Meeting

Zoom Virtual Meeting , United States

CenTex Virtual Chapter Meeting Monday, August 21, 2023 7:00pm – 8:00pm CT Join us as we chat about the upcoming Walk & Roll to Cure FSHD and the FSHD 360!

San Diego Virtual Chapter Meeting 

Zoom Virtual Meeting , United States

San Diego Virtual Chapter Meeting Thursday, August 24, 2023 6:00-7:00 pm PT Register below for our upcoming Walk n Roll Committee meeting. By this date you should be signed up online... Read More »

Connecticut Chapter Annual Luncheon

On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill, CT, United States

Connecticut Chapter Annual Luncheon Saturday, August 26, 2023 12:00pm – 2:00pm ET On the Border Mexican Grill & Cantina 1519 Silas Deane Highway Rocky Hill, CT 06067 Join us to... Read More »

Western PA Drum & Roll Planning Meeting (Virtual)

Zoom Virtual Meeting , United States

Western PA Drum & Roll Planning Meeting (Virtual) Wednesday, September 20, 2023 6:30pm – 7:30pm ET Join us as we plan and discuss the upcoming Drum & Roll!