British Columbia Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Hello BC Friends! Please join us for a virtual meeting on May 3rd, 2023 at 6pm PT! Our guest speaker will be Dr. Jamshid Arjomand, Chief Science Officer at the... Read More »

Michigan Chapter – Inaugural Meeting!

Zoom Virtual Meeting , United States

Join us virtually as we launch our new Michigan Chapter! Come to meet our new Chapter Director, Cassie Harris, to get to know one another, and to find out about... Read More »

Connecticut Connections Reunion

Zoom Virtual Meeting , United States

Connecticut Connections Reunion Wednesday, May 31st, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, Please join us for a virtual reunion... Read More »

Ontario Chapter Meeting

Symposium Cafe 3055 Dundas St W, Mississauga, Ontario, Canada

Join us for an informal breakfast/brunch gathering! Saturday, June 10th, 2023 - 11:00am ET Symposium Cafe: 3055 Dundas St W in Mississauga Dear Ontario friends, Come join your fellow Ontario FSHDers for... Read More »

Bay Area Chapter Meeting

Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United States

Bay Area Chapter Meeting Sunday, June 11, 2023 1:00-3:00 pm PT Hoover Pavilion, Room 208 Stanford Campus Quarry Road, Palo Alto Let's meet together in-person (or Zoom) so that we can catch up... Read More »

Tampa Chapter Gathering

True Food Kitchen 3645 Midtown Dr., Tampa, FL, United States

Tampa Chapter Gathering Sunday, June 11th, 4pm True Food Kitchen 3645 Midtown Dr, Tampa, FL 33607   Dear friends, Please come out and join us for another great get-together of... Read More »

New York City/NJ Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New York City/NJ - Area Chapter Tuesday, June 13, 2023 7:00pm ET via Zoom ​ We hope you can join us for a virtual chapter meeting! We will be discussing... Read More »

PNW Chapter World FSHD Day & Father’s Day Celebration

Cheney Stadium 2502 South Tyler Street, Tacoma, WA, United States

Celebrate World FSHD Day & Father’s Day at the ballpark with the PNW Chapter! Saturday, June 17, 2023 6:00pm Cheney Stadium, Tacoma Tacoma Rainiers vs. Albuquerque Isotopes After you register,... Read More »

British Columbia Chapter World FSHD Day Celebration

The Pint 455 Abbott St., Vancouver, British Columbia, Canada

Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel - Convention Centre : 876-1055 Canada Place, Vancouver,... Read More »

Atlanta Chapter World FSHD Day Watch Party

Azteca Perimiter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs, GA, United States

Join us for the Atlanta Chapter Watch Party as the King & Queen Buildings light up orange in honor of World FSHD Day! Tuesday, June 20, 2023 7:30pm ET El... Read More »

Western PA Chapter Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Meeting Wednesday, June 21 6:30 – 8:00pm ET Please join us for a virtual meeting of the Western PA Chapter to chat among ourselves, plan our family... Read More »

Idaho Chapter Meeting

Louie's Pizza and Italian Restaurant 2500 E Fairview Ave, Meridian, ID, United States

Idaho Chapter Meeting Thursday, June 22, 2023 6:30pm MT Louie's Pizza and Italian Restaurant at 2500 E Fairview Ave, Meridian, ID 83642 Join us for dinner! This will be an... Read More »

Alberta Chapter Meeting

1101 8th Street SE in Calgary, Alberta 1101 8th Street SE, Calgary, Alberta, Canada

Please join us on Saturday June 24th for a casual breakfast get-together, and for our first in-person meeting of the Alberta Chapter! WHAT: Let us treat you to breakfast, hear some... Read More »

FSHD Lab Day at Nationwide Children’s Hospital

Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus, OH, United States

Please join the Columbus Chapter and Nationwide Children's Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then... Read More »

Heartland Chapter Happy Hour

Boulevard Beer Hall 2534 Madison Ave, Kansas City, MO, United States

Heartland Chapter Happy Hour Friday, July 28, 2023 3:30 pm - 5:30 pm CT Boulevard Beer Hall - 2534 Madison Ave, Kansas City, MO 64108 Join us for an afternoon... Read More »

Western PA Summer Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA, United States

Western PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year... Read More »

Mountain State Chapter Meeting

Zoom Virtual Meeting , United States

Mountain State Chapter Meeting Tuesday, August 15, 2023 5:30 pm - 6:30 pm PT | 6:30 pm - 7:30 pm MT Join us for a special chapter meeting for all Mountain... Read More »

Sacramento Chapter Meeting

Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA, United States

DATE: Saturday, August 19, 2023 TIME: 5:00 pm - 7:00 pm PT WHERE: Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825 Join us for an in-person get-together where you will have the chance... Read More »

CenTex Virtual Chapter Meeting

Zoom Virtual Meeting , United States

CenTex Virtual Chapter Meeting Monday, August 21, 2023 7:00pm – 8:00pm CT Join us as we chat about the upcoming Walk & Roll to Cure FSHD and the FSHD 360!

San Diego Virtual Chapter Meeting 

Zoom Virtual Meeting , United States

San Diego Virtual Chapter Meeting Thursday, August 24, 2023 6:00-7:00 pm PT Register below for our upcoming Walk n Roll Committee meeting. By this date you should be signed up online... Read More »

Connecticut Chapter Annual Luncheon

On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill, CT, United States

Connecticut Chapter Annual Luncheon Saturday, August 26, 2023 12:00pm – 2:00pm ET On the Border Mexican Grill & Cantina 1519 Silas Deane Highway Rocky Hill, CT 06067 Join us to... Read More »

Western PA Drum & Roll Planning Meeting (Virtual)

Zoom Virtual Meeting , United States

Western PA Drum & Roll Planning Meeting (Virtual) Wednesday, September 20, 2023 6:30pm – 7:30pm ET Join us as we plan and discuss the upcoming Drum & Roll!    

Colorado Chapter Meeting

Lansdowne Arms 9352 Dorchester St., Highlands Ranch, CO, United States

Sunday, October 22nd 2023, 3-5pm MT Lansdowne Arms - 9352 Dorchester St. in Highlands Ranch. We'll be in the Library Room Hello Friends, I hope you can join us for... Read More »

Connecticut Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Connecticut Chapter Connections Virtual Meeting Join us for a meeting of the Connecticut Chapter on Wednesday, October 25, 2023, from 7:00 from 8:30 pm ET. Please RSVP at the link... Read More »

CANCELED: Alberta Chapter Brunch and Gathering

Tiramisu Bistro 10750 124 St. NW, Edmonton, AB, Canada

** CANCELED ** We are sad to say that due to the lack of RSVP responses, we are canceling the brunch gathering scheduled for this Saturday in Edmonton. Please don't... Read More »

Thanksgiving Special

Virtual TX, United States

Join us for FSHD Radio’s first-ever Thanksgiving Special as we come together and give thanks for the strength and resilience that make our community shine. This year, we want to... Read More »

Sacramento Chapter Meeting

Zoom Virtual Meeting , United States

EVENT: Sacramento Chapter Meeting DATE: Thursday, November 2, 2023 TIME: 6:00 pm - 7:00 pm PT WHERE: Zoom Meeting, Virtual DETAILS: For many of us, communing with Nature is an important contributor to well-being,... Read More »

Greater Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United States

Greater Philadelphia Chapter Meeting Saturday, November 4, 2023 10:00 am – 12:30 pm ET Wissahickon Valley Public Library 650 W. Skippack Pike, Blue Bell, PA 19422 Register here: go.fshdsociety.org/l/701273/2023-05-09/439tq1

Free

Mid-Atlantic Chapter Meeting

Join us for our next Mid-Atlantic Chapter Meeting on Saturday, November 11th, from 12:00 to 3:00 pm ET for an afternoon of in-person food and fun! We'll be celebrating our 2023 Walk & Roll... Read More »