Lighting the Way to a Cure

Kansas City Chapter Meeting

Zoom Web Conference

Please mark your calendars for our first VIRTUAL Chapter Meeting of 2020! When: Saturday, March 28th 1:00-3:00 (Central) Where: Join from your computer or tablet: https://zoom.us/j/918212805 OR by phone 312-626-6799, Meeting ID: 918 212 805 We look forward to brainstorming about the future! We hope you can join us! ~Kiley Higgs, Kansas City Chapter Director... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

South Carolina Chapter Meeting

All are invited to the first “Chapter Chat” hosted by the FSHD Society South Carolina Chapter.    This virtual (online) meeting will be held on Wednesday April 1 at 8pm.  This ‘chat’ is being held to see how everyone is doing and if this virus situation is causing anyone issues....   a chance to share and 'vent'... Read More »

FSHD Society Sequester Camp

Meeting every Thursday, at 1:00 pm ET, our “FSHD Society Sequester Camp” webinar series, will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. This week, Carden Wyckoff and Deborah Schwartz will offer perspectives, tips, and... Read More »

FSHD Connecticut Connections

Connecticut Virtual Meeting https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571, CT

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! For our April meeting, we are excited to welcome guest Speaker,... Read More »

Atlanta Chapter Virtual Meeting

4:00 PM ET/3:00 PM CT/2:00 PM MT/1:00 PM PT Please join us for a Virtual Chapter meeting on Friday, April 3rd! We are thrilled to announce that we will be joined by special guest speaker, Dr. Nicholas Johnson from VCU! He will be speaking to the group about clinical trials: their significance, how to get... Read More »

CANCELLED: Tampa Chapter Meeting

In light of COVID-19 concerns, we will be cancelling the April meeting of the Tampa chapter. We encourage you to join in some upcoming virtual events: Join the Society's weekly online check-in (Sequester camp!): Learn more here! April 3rd virtual meeting of the Atlanta Chapter (Info & RSVP here!) We will be back together soon... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Radio Sequester Camp

Facebook Live

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever... Read More »

FSHD Society Sequester Camp

Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Radio Sequester Camp

Facebook Live

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever... Read More »

FSHD Society Sequester Camp

Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click... Read More »

Southwest Florida Virtual Chapter meeting

FL

2:00 PM ET/1:00 PM CT/12:00 PM MT/11:00 AM PT Please join us on Sunday, April 19th for a virtual chapter meeting! This will be a great opportunity to regroup and check in as a Chapter. We are still formalizing our agenda, but topics will include: Introductions & Checking in with each other What's new/updates from... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Radio Sequester Camp

Facebook Live

CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever... Read More »

FSHD Society Sequester Camp

Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

New England Virtual Chapter Meeting

Boston Boston, MA

6:00pm ET/5:00pm CT/4:00pm MT/3:00pm PT Please Join Us Virtually Tuesday, April 28th Participate virtually at https://zoom.us/j/321084713 Please join us for a virtual check-in meeting with the New England Chapter! Until we can gather in person again, we wanted to touch base and see how everyone is doing. We are working to put together some interesting... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

FSHD Society Sequester Camp

Julie Hershberg, PT, DPT, NCS Join us this week for a webinar on "Staying active while at home: Physical therapy advice for exercise and FSHD," given by Julie Hershberg, PT, DPT, NCS. Dr. Hershberg is a neurologic physical therapist, founder and owner of re+active physical therapy & wellness and adjunct instructor of clinical physical therapy at... Read More »

Pacific Northwest Virtual Chapter Meeting

Seattle, Washington Seattle, WA

11:00am PT/12:00pm MT/1:00pm CT/2:00pm ET Please Join us Virtually Sunday May 3rd Participate virtually at  https://zoom.us/j/356805112 We want to YOU to share your daily survival strategies…pre and post COVID 19.  Please submit a photo of a life “hack", solutions for a life with FSHD, with your personal comments/descriptions to laistar@Verizon.net with the subject line “PNW FSHD... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Connecticut Connections

Connecticut Virtual Meeting https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571, CT

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is:... Read More »

Colorado Virtual Chapter Meeting

Sam Gary Library 2961 Rosyln St, Denver, CO

1:00 PM ET/12:00 PM CT/11:00 AM MT/10:00 AM PT Join us for a Virtual Colorado Chapter Meeting! Saturday May 9th Participate virtually at https://ucdenver.zoom.us/j/5269799585 Could you use a little SUPPORT?? Living through the daily challenges of FSHD can be emotionally and mentally exhausting. Having a support group can HELP! Please join us for an interactive... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

FSHD Society Sequester Camp – Getting more sleep during restless times

Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click... Read More »

Bay Area Virtual Chapter Meeting

Bay Area San Francisco, CA

4:00 PM ET/3:00 PM CT/2:00 PM MT/1:00 PM PT Please join us on Sunday, May 17th for a virtual chapter meeting! This will be a great opportunity to regroup and check in as a Chapter. Log into the meeting here: https://zoom.us/j/93872758259   ~We hope to "see" you there! ~Sue and Kent Drescher, BayAreaChapter@FSHDSociety.org  

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Utah Virtual Chapter Meeting

Utah Virtual Meeting

7:15pm Mountain (8:15pm Central) Please join us on Thursday, May 21st for a virtual chapter meeting! This will be a great opportunity to get to know one another and what we can all bring to our community and Chapter. We will also have Q & A time with Dr. Butterfield, a lead researcher at the... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

FSHD Radio Sequester Camp – Cancelled

Facebook Live

THIS WEEK'S SHOW HAS BEEN CANCELLED DUE TO A SCHEDULING CONFLICT. TIM WILL BE BACK NEXT WEEK WITH HIS MONTHLY INTERVIEW SHOW. We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended... Read More »

FSHD Society Sequester Camp – A new genetic test for FSHD

Dr. Alka Chaubey Join us this week for a webinar on a new genetic test for FSHD. Our speaker, Alka Chaubey, PhD, FACMG, is currently the Head of Cytogenomics at PerkinElmer Genomics. She is double board certified in clinical cytogenetics/genomics and clinical molecular genetics/genomics. In her current role, Dr. Chaubey has led the successful development... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

FSHD Society Sequester Camp – Adapting your home for safety

Constantine Farmakidis, MD Our presenter today is Constantine Farmakidis, MD, from the University of Kansas Medical Center. Dr. Farmakidis will discuss strategies for maximizing home safety, fitness and independence for patients with FSHD. His presentation will be followed by a period of questions and answers. This topic that may be of particular interest in the... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind.... Read More »

FSHD Society Sequester Camp – Stem Cell Research in FSHD

Dr. Rita Perlingeiro Our webinar speaker this week is Dr. Rita Perlingeiro, Associate Professor of Medicine within the Lillehei Heart Institute at the University of Minnesota. Her primary research interests include understanding the molecular mechanisms controlling lineage-specific differentiation of pluripotent stem cells, and applying this information to efficiently generate tissue-specific stem/progenitor cells endowed with in... Read More »

Columbus Virtual Chapter Meeting

Virtual TX

1:00 PM ET/12:00 PM CT/11:00 AM MT/10:00 AM PT Join us for a Virtual Columbus Chapter Meeting! Sunday, June 14th Participate virtually at https://us02web.zoom.us/j/82449877094 OR By phone: 646-558-8656, Meeting ID: 824 4987 7094 This will be a great opportunity to get to know one another, talk about upcoming events, and see how everyone is doing and... Read More »

Central Texas Virtual Chapter Meeting

Virtual TX

3:00 PM ET/2:00 PM CT/1:00 AM MT/12:00 AM PT Join us for a Virtual Central Texas Chapter Meeting! Sunday, June 14th Participate virtually at https://us02web.zoom.us/j/85194475188 OR By phone: 346-248-7799, Meeting ID: 851 9447 5188 We welcome everyone from all across Texas to join us! This will be a great opportunity to get to know one... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

Recurring

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind.... Read More »

Pacific Northwest Virtual Chapter Meeting

Seattle, Washington Seattle, WA

Thursday, June 18, 2020 5:00pm-6:00pm PT JOIN THE ZOOM MEETING HERE We look forward to "seeing" you all on the 18th. This will be a great opportunity to talk about upcoming events, and see how everyone is doing and handling our “new normal!! Plan to join us for our World FSHD Day photo opp… bring... Read More »

Arizona Virtual Chapter Meeting

Arizona AZ

Thursday, June 18, 2020 7:00pm-8:00pm Arizona Time JOIN THE ZOOM MEETING HERE https://us02web.zoom.us/j/88930381251 The first half of this year has been challenging for everyone. We hope that you are staying safe and able to look after your physical and mental well-being. This is a challenging and exciting time for the FSHD Society. This will be... Read More »

Tampa Virtual Chapter Meeting

tampa Florida

Thursday, June 18, 2020 7:00pm-8:00pm Eastern Time JOIN THE ZOOM MEETING HERE Please join us for a Virtual Chapter Meeting! This will be a great opportunity to “see” how everyone is doing and talk about upcoming events, such as World FSHD Day, FSHD Connect Classroom, Voice of the Patient, and the Virtual Nationwide Walk &... Read More »

World FSHD Day

Every June 20th, people around the world join in activities to raise awareness for Facioscapulohumeral muscular dystrophy (FSHD) through World FSHD Day. How to get involved The Orange Slice Selfies campaign is our signature social media event to recognize World FSHD Day. Supporters post a photo of themselves to social media using an orange slice... Read More »

Recurring

Fitness workouts with Bill and Mitch

3:00 PM ET | 2:00 PM CT | 1:00 PM MT | 12:00 PM PT Mitch Wade and Bill Herzberg Fitness workout webinars with Bill Herzberg and his trainer Mitch Wade, owner of RAMP Fitness in Portland, OR. They were so impressed by the progress Bill has made in addressing his FSHD muscle weakness by... Read More »

Recurring

Story time with Belinda Miller

Those of you who have kids at home and are wondering how to fill the day with activities, gather around the family computer! Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest series, Winterfrost.Award-winning author Belinda Miller will read every week from the first volume of her Phillip's Quest... Read More »

FSHD Radio Sequester Camp

Facebook Live

7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind.... Read More »

South Carolina Virtual Chapter Meeting

Virtual Denver,

Tuesday, June 30th, 2020 8:00pm-9:00pm Eastern https://us02web.zoom.us/j/81351746544 Please join us for the next South Carolina Chapter virtual meeting! We invite all members to come and share their thoughts, quarantine experiences, and questions. We hope to “see” you there! ~Frank Hanley, South Carolina Chapter Director, SouthCarolinaChapter@FSHDSociety.org

San Diego Walk & Roll to Cure FSHD

Harbor Island Park 1875 Harbor Island Dr. - San Diego, San Diego, CA

The 2020 San Diego Walk & Roll to Cure FSHD has gone VIRTUAL! Sequester-at-home restrictions and public safety guidelines have us all in our homes. While we certainly hope we can all safely come put into the community again by July 11, that remains uncertain. So we have decided to transition our San Diego Walk &... Read More »

Pacific Northwest Virtual Chapter Meeting

Seattle, Washington Seattle, WA

Pacific Northwest Virtual Chapter Meeting Saturday, July 11, 2020 10:30 am - 11:30 am PT JOIN THE ZOOM MEETING HERE This will be a tutorial on how to sign up for the Walk & Roll and create teams, and set up your pages! We look forward to "seeing" you on Saturday! We hope you can... Read More »

Colorado Virtual Chapter Meeting

Virtual Denver,

11:00am - 12:30pm Mountain Please join us on Saturday, July 11th for a virtual chapter meeting! Log into the meeting here: https://ucdenver.zoom.us/j/93149824739  

Recurring

FSHD Society Radio

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to... Read More »

Webinar – Living well with FSHD. Thriving in difficult times

Ora Prilleltensky (lower right) with her family. This webinar is scheduled for 1:00 PM ET | noon CT | 11:00 MT | 10:00 PT This month’s webinar is presented by Dr. Ora Prilleltensky, a psychologist by training whose research and approach to well-being in the face of chronic disability is informed by her personal experiences as an... Read More »

Idaho Chapter Launch

Louie's Pizza & Italian Restaurant 2500 E. Fairview Ave, Meridian, ID

Please join us for the Idaho Chapter Launch on July 18th from 12:00pm-2:00pm We will have a meet and greet, lunch, and an FSHD Society 101 with insight into what is coming up including therapeutic treatment trials. Mark Stone, President and CEO of the FSHD Society, will be joining us to provide updates and answer... Read More »

Recurring

FSHD Society Radio

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to... Read More »

FSHD Society Radio explores Qigong

Facebook Live

10:00 PM ET | 9:00 PM CT | 8:00 PM MT | 7:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. During the hour-long program, you’ll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party... Read More »

St. Louis Virtual Chapter Meeting

St. Louis MO

Save the Date St. Louis Virtual Chapter Meeting Thursday, August 6, 2020 6:30 - 8:00pm CT JOIN THE ZOOM MEETING HERE Password: 669756 Sara Heineman, MSGC, LGC, a licensed genetic counselor and a genomic testing consultant from PekinElmer Genomics will be presenting information on their new genetic test for FSHD. The FSHD Society has partnered... Read More »

FSHD Society Radio on Mindfulness

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Our guest this week is Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy and workshops in Mindfulness Based Cognitive Therapy (MBCT) and mindful approaches to cope... Read More »

Los Angeles Virtual Chapter Meeting

Los Angeles Los Angeles,

Los Angeles Virtual Chapter Meeting Saturday, August 15, 2020 10:30am-11:30am Pacific Time Zone Please join us Virtually LOG IN HERE Password: 059647 This will be a great way to share resources, catch up and talk about the upcoming Walk & Roll on September 12th!

Bay Area Virtual Chapter Meeting

Bay Area Virtual San Francisco, CA

Bay Area Virtual Chapter Meeting Sunday, August 16, 2020 1pm-3pm Pacific Time Please join us Virtually LOG IN HERE Password: 091299 Please join us on Sunday, August 16th for a virtual meeting with the Bay Area Chapter! In addition to being a great opportunity to catch up and talk about the upcoming Walk & Roll in September... Read More »

FSHD Society Radio on Exercise and Fitness

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening.  Our guests tonight are our favorite exercise mavens, Bill Herzberg and Mitch Wade. They'll be sharing their experiences with workouts that have improved Bill's strength, range of motion, and endurance. Mark... Read More »

FSHD Society Radio on scapular surgery

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Tonight's guest is Dr. Anthony Romeo, a distinguished orthopedic surgeon who is one of the leading experts on surgery to stabilize the shoulder blade (scapula) in individuals with FSH muscular dystrophy.... Read More »

Pacific Northwest Virtual Chapter Meeting

Seattle, Washington Seattle, WA

Pacific Northwest Virtual Chapter Meeting Saturday, August 29, 2020 12:00 pm - 1:00 pm Pacific Time JOIN THE ZOOM MEETING HERE Join us to talk about the PNW Walk & Roll for a Cure Updates and First Freedoms After COVID 19. We look forward to "seeing" you on Saturday! We hope you can join us!... Read More »

FSHD Society Radio

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. This week, Beth Johnston and Leigh Reynolds are our guests, talking about the FSHD Society's biggest fundraising event of the year, the Walk & Roll to Cure FSHD on September 12.... Read More »

Recurring

FSHD Connecticut Connections

Connecticut Virtual Meeting https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571, CT

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is:... Read More »

FSHD Society Radio with Jen Egert

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Our guest tonight is Dr. Jen Egert, a psychologist living with FSHD, who will discuss strategies for maintaining peace of mind in these stressful times. Mark your calendar. Invite your friends... Read More »

Idaho Chapter Breakfast Celebration

Julius M. Kleiner Memorial Park 1900 N. Records Ave, Meridian, ID

9:30am - 11:30am Please join us for an all-chapter picnic breakfast in the park as we celebrate our new chapter and the Idaho Virtual Walk & Roll! Julius M. Kleiner Memorial Park 1900 N. Records Ave. Meridian, Idaho 83646 ~Hope you can join us for this gathering in the park. We'll have pancakes and plenty... Read More »

Arizona Walk & Roll to Cure FSHD

Arizona AZ

Please mark your calendars: The 2020 Arizona Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Landon & Marie Morrell, with any questions! They can be reached at ArizonaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

Atlanta Walk & Roll to Cure FSHD

Atlanta, GA Atlanta, GA

Please mark your calendars: The 2020 Atlanta Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jack Gerblick, with any questions! He can be reached at AtlantaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

Bay Area Walk & Roll to Cure FSHD

Bay Area San Francisco, CA

Please mark your calendars: The 2020 Bay Area Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Kent & Sue Drescher, with any questions! They can be reached at BayAreaChapter@FSHDSociety.org We look forward to "seeing" you on the 12th!

Central Texas Walk & Roll to Cure FSHD

Texas TX

Please mark your calendars: The 2020 Central Texas Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Questions? Please reach out to the Chapter Director, Rachel Sartin at CenTexChapter@FSHDSociety.org, Or the Fundraising Leader, Ashely Bryan at ashleybryan1@gmail.com We look forward to "seeing" you on September 12th!

Chicagoland Walk & Roll to Cure FSHD

Chicago IL

Please mark your calendars: The 2020 Chicagoland Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Dave Lukas, with any questions! He can be reached at ChicagoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

Colorado Walk & Roll to Cure FSHD

Colorado CO

Please mark your calendars: The 2020 Colorado Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Anne Babcock, with any questions! She can be reached at COWnR@fshdsociety.org We look forward to "seeing" you on September 12th!

Columbus Walk & Roll to Cure FSHD

Columbus OH

Please mark your calendars: The 2020 Columbus Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be reached at ColumbusChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

Connecticut Walk & Roll to Cure FSHD

connecticut CT

Please mark your calendars: The 2020 Connecticut Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Peter "Pogo" Pogozelski , with any questions! He can be reached at CTWnR@fshdsociety.org We look forward to "seeing" you on September 12th!

East Tennessee Walk & Roll to Cure FSHD

East Tennessee knoxville, TN

Please mark your calendars: The 2020 East Tennessee Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jennie Harriman, with any questions! She can be reached at EastTNChapter@fshdsociety.org We look forward to “seeing” you on September 12th!

Greater Philadelphia Walk & Roll to Cure FSHD

Greater Philadelphia Philadelphia, PA

Please mark your calendars: The 2020 Greater Philly Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leaders, Taylor & Colin Quigg, with any questions! They can be reached at PhillyWnR@fshdsociety.org We look forward to “seeing” you on... Read More »

Idaho Walk & Roll to Cure FSHD

Idaho 1900 Records Avenue, Meridian, ID

Please mark your calendars: The 2020 Idaho Walk & Roll to Cure FSHD has gone VIRTUAL We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Minette Hale, with any questions! She can be reached at IdahoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

Kansas City Walk & Roll to Cure FSHD

Kansas City Kansas City, MO

Please mark your calendars: The 2020 Kansas City Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Kiley Higgs, with any questions! She can be reached at KansasCityChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

Los Angeles Walk & Roll to Cure FSHD

Los Angeles Los Angeles, CA

Please mark your calendars: The 2020 Los Angeles Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Graciela Saunders, with any questions! She can be reached at gracielanoels@gmail.com We look forward to "seeing" you on September 12th!