Wellness

Wellbeing goes far beyond just your physical health. For many people living with FSHD, mental health can be just as debilitating as the loss of muscle strength and function. It is equally important to take care of your mental and emotional health, and we have some resources available to help you get started.

Professional care

There are plenty of therapists, counselors, and mindfulness coaches out there to help you in your journey. You can ask your primary care doctor for a recommendation for these services. You can also find these professionals via online search tools:

https://www.findatherapist.com/

https://www.psychologytoday.com/us/therapists

https://mentalhealthmatch.com/

https://www.goodtherapy.org/

Search for providers in your area using our new Care Connector tool! Search using the “Specialties” filters for Behavioral/Mental Healthcare, or Psychiatry.

FSHD Care Connector

No one needs to face FSHD alone

There is great comfort in shared experiences. Come to the Gathering Place – a collection of virtual groups that meet monthly on a variety of topics and share similar interests. Exchange ideas, offer support, and gain insights. Find the group – or groups – that appeal to you and fit where you are in your FSHD journey, then join the group and meet us online each month.

Gathering Place

Looking for local resources? Connect with a Chapter in your area!

Local Chapters

Mental health and wellness videos

Stop by our Mental Health & Wellbeing playlist on our YouTube channel.

Here you’ll find discussions on a variety of topics.