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There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than if we were to do it alone. Volunteers lift up our FSHD community, and every single one of us can contribute. Whether you are interested in a one-time event opportunity or you’d like to be a part of our volunteer leadership, the FSHD Society has a role for you!
Led by volunteers and supported by FSHD Society staff, the Chapter Program is a great opportunity to connect with patients and advance progress toward our mission. Our Walk & Roll to Cure FSHD program is our leading peer-to-peer fundraising event and a wonderful opportunity to take on if you’re interested in hosting a community fundraiser aimed at supporting research for treatments and a cure. If you like talking to people one-on-one and helping them find local resources, you might become a Navigator. These are just a few ways you can get involved to ensure that no one faces FSHD alone.
