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The FSHD Society is at the forefront of driving research, empowering families, expanding access to care, and advocating for lasting change. Your support fuels groundbreaking progress in treatments, provides life-changing resources for those affected, and ensures no one faces this disease alone.
With your generosity, we are:
We take donor trust seriously. The FSHD Society meets the highest standards of financial accountability, earning BBB Wise Giving accreditation and eleven consecutive 4-star ratings from Charity Navigator, placing us among the top-performing U.S. nonprofits.
Whether you choose to make a donation, start a fundraiser, or leave a legacy gift, every action moves us closer to treatments and a better future for all individuals with FSHD.
If you’d like to speak directly with someone about making a gift, please contact Chelsea Moeller, Director of Development, at (781) 301-7301 or chelsea.moeller@fshdsociety.org.
Your direct donation supports innovative research, patient programs, and advocacy efforts.
Donate by phone: Call (781) 301-7301
Donate by check: Download our Offline Donation Form and mail to:
FSHD Society
P.O. Box 411617
Boston, MA 02241-1617
Donate online: Click below to make a secure donation.
Donate NowJoin our monthly giving program and provide sustained support that helps advance research, advocacy, and community programs year-round.
Light the way to a cure—become a Torchbearer today!
Make an impact your way by organizing an event or fundraiser that resonates with you. We provide the tools and support—you bring the passion and creativity!
Donating stocks, bonds, or mutual funds is an easy way to support the FSHD Society while potentially enjoying significant tax benefits.
For more information, contact Agnes Mestrich at (781) 301-6058 or Agnes.Mestrich@FSHDSociety.org.
Make a difference through your employer’s charitable campaigns, including:
If you have any questions or need assistance, please reach out by phone at (781) 301-7301 or email us below:
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