Ways to Give

The FSHD Society is at the forefront of driving research, empowering families, expanding access to care, and advocating for lasting change. Your support fuels groundbreaking progress in treatments, provides life-changing resources for those affected, and ensures no one faces this disease alone.

Your Gift Powers Real Change

With your generosity, we are:

  • Accelerating research through global collaborations, clinical trial expansions, and breakthrough scientific initiatives.
  • Empowering families through direct support, education, and community-building efforts that connect thousands of people annually.
  • Driving advocacy and regulatory change, ensuring patient voices are heard in Congress, with the FDA, and in healthcare policy.
  • Expanding access to care through the FSHD Navigator Program, helping individuals navigate treatment, insurance, and clinical trials.

We take donor trust seriously. The FSHD Society meets the highest standards of financial accountability, earning BBB Wise Giving accreditation and eleven consecutive 4-star ratings from Charity Navigator, placing us among the top-performing U.S. nonprofits.

Whether you choose to make a donation, start a fundraiser, or leave a legacy gift, every action moves us closer to treatments and a better future for all individuals with FSHD.

If you’d like to speak directly with someone about making a gift, please contact Chelsea Moeller, Director of Development, at (781) 301-7301 or chelsea.moeller@fshdsociety.org.

There Are Many Ways to Give

Make a Direct Gift

Your direct donation supports innovative research, patient programs, and advocacy efforts.

Donate by phone: Call (781) 301-7301

Donate by check: Download our Offline Donation Form and mail to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

Donate online: Click below to make a secure donation.

Donate Now

Become a Torchbearer

Join our monthly giving program and provide sustained support that helps advance research, advocacy, and community programs year-round.

Light the way to a cure—become a Torchbearer today!

Host a DIY Fundraiser

Make an impact your way by organizing an event or fundraiser that resonates with you. We provide the tools and support—you bring the passion and creativity!

Start Your Fundraiser – Learn More

Give a Gift of Stock

Donating stocks, bonds, or mutual funds is an easy way to support the FSHD Society while potentially enjoying significant tax benefits.

For more information, contact Agnes Mestrich at (781) 301-6058 or Agnes.Mestrich@FSHDSociety.org.

Participate in Workplace Giving

Make a difference through your employer’s charitable campaigns, including:

  • United Way: Check with HR to see if you can direct contributions to the FSHD Society.
  • State Employee Campaigns: We are a registered charity in all 50 states and can apply for workplace giving campaigns upon request.
  • Other Corporate Giving Programs: Ask your employer how the FSHD Society can be included in your workplace giving efforts.

Have Questions? We're Here to Help!

If you have any questions or need assistance, please reach out by phone at (781) 301-7301 or email us below:

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