Fundraise Your Way

Every year, people from all over the country come together to raise money to help find treatments and a cure for FSHD. These amazing volunteers are making a real difference—and you can, too!

Whether you host a Pampered Chef party, put together a golf day or turn your birthday into a day of donation instead of gifts, you can help in your own special way. Choose what inspires you, and we’ll give you everything you need to get started.

So, what are you waiting for? Let’s make a difference—together!

With questions, please contact us at FSHCommunity@FSHDSociety.org.

DIY Fundraisers

Hosting a Do It Yourself (DIY) fundraiser allows YOU to decide when, where, and how you support the FSHD Society. Plan something fun that matters to you, and we will provide the tips, tools, and resources to make it happen.

Need help? Check out our DIY Toolkit >> for great ideas and easy ways to get started!

Start Your Fundraiser

Endurance Events

Joining an endurance event is a powerful way to combine personal achievement with meaningful impact. Each mile you cover helps to fund critical research, support families and raise awareness. Join one of our charity partner events or choose any endurance event you’d like to participate in.

Check Out Our Events  

  • Triple Bypass
  • Falmouth Road Race
  • Twin Cities Marathon
  • Or pick your own favorite race!
Email Us for More Information

Memorial Fundraisers

Honor someone you love by creating a Memorial Page. It’s a beautiful way to remember them while helping others living with FSHD. Their story can inspire hope and support.

Create Your Page

Celebration Fundraisers

Make your next birthday, holiday, or special event extra meaningful! Create a Celebration Fundraiser to share why FSHD matters to you, and invite family and friends to join your cause by donating.

Create Your Page

Community Impact:

  • Hundreds of events completely managed by volunteers
  • Over 10,000 donors contributing to the mission of putting an end to FSHD
  • More than $5 million raised to support FSHD research and patient programs