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Be part of the movement powering the path forward for people living with FSHD. Whether you’re looking for the latest updates or want to get more involved, we’re here to connect you with the information and opportunities that matter most.

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Want a deeper connection? By joining the FSHD Society, you’ll receive resources tailored to your interests, updates on key initiatives, and opportunities to get involved in advocacy, research, and community events.

Tell us a little more about yourself, and we’ll send you information that’s most relevant to you. You can change your email and mailing preferences at any time.

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