
Self-care: Critical for Carers
Being a caregiver (or what we often call a care partner, or “sharegiver”) to a loved one with FSHD is an important responsibility that can be both rewarding and challenging. To care for others effectively, you must make sure to first take care of yourself—and that’s where self-care comes in.
Self-care is essential for your well-being. It’s about finding balance and moments to recharge. This ensures you can provide the support your loved one needs while maintaining your own health and peace of mind. Whether it’s setting boundaries, seeking support, or simply taking time for yourself, every step you take toward self-care is important. These actions benefit both you and the person you care for.