
Who’s on your care team?
FSHD affects everyone differently, so the care team for one person may look different from someone else’s. Here are some of the key providers you may see:
- Neurologist – A doctor who specializes in muscle and nerve diseases. They can confirm your diagnosis, track how FSHD is progressing, and help manage symptoms.
- Physical Therapist (PT) – Helps keep your muscles as strong and flexible as possible with personalized exercises and movement strategies.
- Occupational Therapist (OT) – Teaches you ways to make daily activities easier, such as using adaptive tools or adjusting your home setup.
- Respiratory Therapist – Helps monitor and support your breathing, especially if FSHD affects your lungs or makes it hard to breathe deeply.
- Orthopedic Specialist – Can help with joint problems, scoliosis, or foot drop by recommending braces, surgery, or other treatments.
- Speech Therapist – If FSHD affects the muscles in your face or throat, they can help with speaking, eating, and swallowing safely.
- Genetic Counselor – Helps you understand genetic testing and what it means for you and your family.
- Primary Care Doctor – Your main doctor who keeps an eye on your overall health and helps connect you with specialists.