Family Planning

Thinking about growing your family? Congratulations! During one of the most exciting times in family life, you will probably have many more questions than answers. Here are some FSHD-specific resources to get you started.

A good primer is this conversation with genetic counselor Julie Cohen.

FSHD University held a webinar with Dr. Sanne Vincenten and Dr. Nicol Voermans on pregnancy and reproductive genetic counseling.

FSHD Straight Talk radio show hosted community members Deb Calhoun and Jim & Mary Albert to discuss adoption.

The Young Adults gathering place group hosted Julie Cohen for a talk on genetic counseling and family planning.

Still have questions? We’re here to help! Reach out to the Navigator program, and we can help connect you to the right place.