What is BetterLife FSHD?
BetterLife FSHD is a health and research platform created to help people living with Facioscapulohumeral Muscular Dystrophy (FSHD). BetterLife gives you tools to track your symptoms and resources to better understand and manage your FSHD. The information you put in BetterLife is used for FSHD research. When you join BetterLife you can:
- Track your Health: Keep an eye on your symptoms and monitor changes over time.
- Get Helpful Resources: Find information made just for people with FSHD about the symptoms you are experiencing.
- Find FSHD Research: Learn about and see if you qualify for research studies investigating FSHD.
- Share Data Safely: Your health information helps researchers while staying private.
By joining, you’re helping to speed up research and bring potential new treatments closer to reality.